I got a call at 4.30 am this morning (Monday), my mom had been having night terrors last night and was delirious/having hallucinations. The on-call palliative night team was called but they were too busy to come, said we’d need to ring 111.
I’ve had about 2 or 3 hours sleep a night for the last couple of nights due to worry.
This is on the backdrop of:
Saturday morning, a nurse came & said we should have a hospital bed, said they’d ring when it was coming. Saturday afternoon, no call, out the blue, the bed turns up. We had to send it away as we still hadn’t managed to get the other bed, in the other room, out the house.
Sunday, nurse comes, said she’d get some anti sickness & some anti anxiety meds, she couldn’t, I don’t know why, so we went without, we were told to double up on the anti sickness tablets, hence the Sunday night into Monday issue.
Sunday late afternoon, hospital bed was supposed to turn up as planned, it didn’t.
This is SO SO hard and it’s being made to feel harder as we’re just in this constant state of hell. I wish mom had chosen hospice care as home care is not all it’s cracked up to be. You’re just left on your own. It’s not the nurses fault, the system is broken but I COME-ON, how much more of this?!!!
I thought we’d have better support.
