Feeling helpless

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I’m caring for my terminally ill husband.  He won’t eat or drink sleeps most of time but now he has become confused.

I'm up several times in the night now and I'm exhausted and teary.

I’m not sure what the palliative care team actually does but once they met him he was told they won’t be in touch again unless he needs them!!  We don’t know what that means.  We seriously feel abandoned and I’m just overwhelmed.

i don’t know what I need but it’s something.

  • Hi Annie

    I am sorrry to read that you are in this position. Caring for your partner is exhausting and traumatic.

    You mention the palliatjve care team, is this through a hospice? If not, do you have one you can be referred jnto? They arent typically there just at the very end but can iften support you too.

    If this isnt the case, go back to the team and say he needs them now. Or go back to the GP. My husband died in October and I was his sole carer until the last couple of days. I was on the phone to the GP a lot in the last 6 weeks as his symptoms got worse. He also stopped eating, I had to beg him to drink and he had hallucinations towards the end. 

    You can also request a cater assessment, although mine came through the day after he died. 

    Talk here, you can call Macmillan as well. You are amongst people here who get it as we have all been there or are there. 

  • Thank you Malengwa, that is good to know.  The palliative team have been in touch through our GP and nobody has even mentioned hospice care or input.

    I truly do feel alone and let down by the care system.