I don’t even know where to start with my emotions so I’ll apologise in advance if I ramble.
my partner collapsed in Jan, was diagnosed pretty much within a few days of neuroendocrine cancer with the primary tumour in his bowel. It had caused an obstruction, he spent a week in hospital having tests and the. Came home once stabilised. However his pep scan showed that it had metastasised to his liver. Originally they thought one side was affected. The orginal plan was injections once a month to slow the hormones down the tumours are makimg, bowel surgery to remove his primary tumour and then potential resection of his liver and then targeted radiation into his liver as chemo isn’t an option due to his type of cancer being chemo resistant.
However here is the kicker, the liver team requested an updated ct scan of his liver but a different view. They were due to hold a muti dispapline meeting on the 13th and are bringing us in on Friday to discuss the results and the plan. Imagine our absolute delight and a major amount of disgust that his ct scan results have been put on his my chart last week and it states terminal neuroendocrine cancer!!! What the actual ****!! How is this ok? To find out he is terminal without prior discussion is insane! And reading a lot of medical jargon is all to much, my heart is broken. We were planning out futures, he’s 40 I’m 43. Kids are grown, we were getting married and now we are facing this! I’m frightened scared and have the most intense anger in the pit of my stomach! Why us?!?!
how do you guys cope! I have zero support his parents don’t even know the full extent of things it’s just me and him that do, he has a huge circle of people ensuing he has mental health support, I have no one. The one person I told who I thought was a close friend hasn’t contacted me since. I can’t do this!! I can’t watch the man I love die and then continue without him.
thank you for reading and sorry for the waffling but I have no where else to turn to
