Hello,
I am new to this forum. I am grateful for being pointed in its direction. I have read lots of posts from carers/wives and Partners who are going through a similar situation to me. My husband was diagnosed in May this year, with advanced prostate cancer which has spread to his bones, lymph nodes, spinal cord and he has spinal cord compression. He is unable to stand or walk. Is doubly incontinent. He was a needy Mann before all this happened and is understandably even more needy now. He has adult children who phone now and again but hardly ever visit and they have made it clear they will not be involved in his care. I feel stressed, anxious and tired out all the time. Reading your posts has lifted my mood, knowing I am not alone in having to cope with everything involved in caring for my husband. It is non stop, even with paid carers coming in to hoist him from bed to wheelchair. The carers seem to make more work, the washing machine is on at least twice a day, cleaning up after them, spills of soiled water dripping down onto the floors, the sinks need cleaning etc. all the appointments happen at home and my husband wants me there to be involved in all of them. I give meds, food drink, keep house and look after our dog. Life is so tough and I feel awful for not coping especially when I know this can only end in one way…and I am scared for the future without him.
I have rambled but that is how my brain is working these days…it is good to be able to say all this to people who understand, thank you.
