Hi, my son was diagnosed with APML leukemia in April this year. We are now just over half way through his chemo treatment. He is doing as well as can be expected. I am his main carer, organizing meds (waking him each day to take them as some are time sensitive) and hospital outpatient appointments, managing emotions and life on hold for him. He has an amazing support network through the Teenage cancer Trust and our family. My main reason for joining today is I work for my husbands company and he is the director (he is my son's step dad) and I have not felt supported by others within the company through the whole journey. Pressures mentioned about me getting back to work 2/3 weeks after diagnosis or my pay would be cut, no other support apart from my husband who is going through this process also. As we are further along people seem to forget you are still facing this every day! I am now managing 32 hours a week and 2 hospital visits and medication administration, sometimes i feel like I might break. It can be so hard.
