Husband in good spirits despite all this. Local hospice nurses and cancer hospital very quick to respond as his neck and back pain is worsening. He is on low dose MST, still having chemo and about to have bone strengthening injections ( following radiotherapy on spine earlier in year). The focus is on preventing spinal cord compression
but what to expect.. what if he becomes unable to do these things, what if the pain becomes uncontrollable? currently he can’t lift things or drive ( not allowed to rather than unable), still cooks - his main focus of the day- and when the morphine works, is realistic and trying to focus on enjoying the here and now.
maybe I shouldn’t think too far into the future … that’s been the advice I’ve had but I worry I won’t be up to caring for him beyond what I’m doing now…mmsnyone with d sf similar experience?
Hard as it is focusing on each day is best and with each day you will care and help him get through it. My husband has terminal lung cancer and it has spread to his brain and liver. I have watched him slowly slip away. He is now on end of life care at home where he wants to be. we have hospice at home here every day and they are great. We have always tried to focus on one day at a time trying to make memories. Now we sit often in silence as he's too tired but I chat about the things we have done and places we visited. I thought it would be hard to care for him at home ,and my grown up children won't be able to cope, but each day we have done it together and when we see him comfortable and peaceful it gives us some peace. On my own I want to just scream and cry and I do.
The hardest thing about this horrible thing is to ask for help . Until I came on here I was feeling useless and didn't know if I could cope, then reading the posts and seeing so many in my situation and feeling how I feel it helped. I was so scared that if I told people how I felt and I was scared of what was coming they would say he would have to go into a home or hospital, that's not what we want . Instead I have been offered help and support to keep him at home and to cope .
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