Hi all, I care for my mum, just me, it’s always been just mum and I. My hubby n kids are great but mum and I are close. She has had 4 years of chemo n meds. I have taken her to her hospital appointments stayed with her through chemo. This time chemo hasn’t worked, infact the last few months she has got weaker, and it’s fairly aggressive. I realised today that I’m not coping very well. Mum has said no more, she has had enough, she dosnt have a good day anymore, her quality of life is pretty awful. Pain, nausea, fatigue. She said she just wants a nice few months. I took her to Wales last week, it rained the whole time, I realised how weak she was and also how hard it is to navigate hilly Wales in a wheelchair anyway just wanted to share as sometimes it’s good to get it off your chest!!
Hi
Can totally understand your feeling of coping or not was told yesterday my mum has possibly 3 months.
Her breast cancer has been a 6 year rocky road first 2.5 her not telling anyone. Op radiotherapy.
Point blank refuses chemo , anything that could elevate bottom pain .meds etc never taken any so not now
I take her to her appointment's she doesn't listen properly
She gave her permission for her consultant to answer my questions on my own as she doesn't want to know what they say .
He could not have been kinder explained she is not alone in her reaction. Explained copying strategies to try and get her to accept more help .
But the biggest thing he told me was I'm doing all the things she needs and doing it well .
So had a cry rang a few people who needed to know and now am off to face the first day of the next few months hopefully longer of rocky roads.
And sending hugs and best wishes to the rest of us out there going along this shitty path .we can do this
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