My husband was diagnosed with stage 4 lung cancer 2 1/2 years ago at 43 yrs old. We'd only been together 6 years, married for 2. I was heartbroken by the news. He had chemo and is just coming to the end of his immunotherapy. The cancer is barely there and he is very well, other than getting tired and picking up bugs easier than most. This is obviously brilliant news and I am so grateful the treatments have worked so well for him.
However, for me my whole life has changed. We'd made so many future plans to explore the world and travel, that is now over. I thought I'd found my forever man, someone I was deeply connected with, that is now over. Emotionally we are not a couple anymore, we barely have sex, our conversations are just chit chat, nothing deep and meaningful anymore, he doesn't open up to me about anything. I don't have a husband anymore, i just live with a mate.
He doesn't work anymore, and spends his days pottering about the house and garden doing his own thing, always busy, always doing something but then crashes in the evenings and is asleep on the sofa by 8pm. He forgets things a lot which means I have to take up the slack...but it's OK cos he just forgot!
It's awful but I feel irritated. I go to work every day, I cook tea every night, I do my share of the household chores and I feel like he just gets to do what he wants when he wants.
When I've spoke to him about it he says this is what it's like when you've been with someone a while...what 8 years? He says relationships are just like this. He says he can't open up and talk, I asked him to go to counselling to talk about his life and his cancer, he had a huge trauma in his childhood, he says he's waiting to hear from someone, this is 6 months ago. I don't feel I have a connection with him anymore. He either doesn't know what to do or he doesn't want to. It's like he can't think about anything that involves emotions, but I need that.
I hate feeling this way, I think do I feel this way because of the cancer, the life change or the fact we have no connection. Am I resentful, jealous? Sometimes I want to leave and be back on my own but the upheaval of that fills me with dread and I do love him. I just want him to understand me, talk to me and love me again. I protect myself by shutting down from him, doing my own thing, not saying how I feel, but then i pick at him which I can tell annoys him, but I know why I do it, it's because I feel we are drifting apart, he snaps and I then retreat because I can't be arsed with an argument. He's much more short tempered now and will snap at me easily. It's like his whole attitude has changed, like he doesn't care about stuff anymore, but some of it is stuff I feel he should still care about.
I guess I just wonder if anyone else has been through anything like this...am I just being selfish, I feel bad for feeling this way...
You're not being selfish, you are reacting to your whole life crashing down around you and the man you love becoming a different person. There are many similarities in our situations, although we are much older (70s) but my husband has changed so much and I miss who he was and what we had. We have no plans, I shoulder the burden of his care alone and my life, like yours, is wrecked. We are not selfish and we mustn't feel guilty, we're doing our best in all this. I would say try to find something of your own that gives you pleasure and solace, for me it's my garden. I walk my dog, chat to friends, but mostly people's concern is for him (as it should be, I know) and nobody gets this unless they've been there. I don't have any answers but try not to think ahead, try to live day by day, week by week, and take pleasure in the small things. Every morning I wonder how I can get through another day but I do, and you are too. You can't make someone talk about their feelings, I've had to accept that. Sorry if this is rubbish, your post just resonated with me and I wanted to reach out to you. Good luck and much love xx
Hello...I echo spirit in the skys words. my husband has secondaries in the lungs, and the immunotherapy is working but his tiredness is overwhelming. He's also dealing with the side affects of radiation to his throat which is constant mucus and swallowing issues due to scar tissues, which get him down a lot. So he is diminished as the person he was as he is dealing with this and the permanent exhaustion. every day is like groundhog day with the same things being felt and said! I too live for my dog walks, coffee with friends (who understand as they have their own health challenges with husbands). I don't look ahead, just try to appreciate what we have every day, and take the goodness out of life. I think when people are this ill, they kind of retreat into theirselves.
Love and best wishes to all of us!
Thank you for the replies, I too do the little things for myself like gardening being with my dog, work, visiting my mum. I guess I just feel the togetherness of us has gone and I think is this it now, is this my life at 45. My kids are grown, it's meant to be me and him but it's just me, and yes everyone is always concerned for him as they should be, but no one really thinks about how it's changed my life. I just have to get on with it and pick up the peices when he's overdone it. I'm just whining, it's not always so bad, but it's nice to get it out so thank you.
I understand everything you have said. I am lucky in that most people understand that its hard for me too. We just have to get through this as best we can. I tell myself if others can get through these times, I can too. And hope I can! Try telling your friends how you are feeling, Baye. You've got to get support for yourself too xx
Hello, reading this made me feel less alone. My husband is a good deal older than me and has multiple health conditions and now bladder cancer. I still work, have energy and dreams but my world has shrunk and all I do is sort things out, shop, clean, cook and organise hospital visits. I feel like I’m being slowly erased and I have bouts of overwhelming sadness, anxiety and bouts of feeling sorry for myself. Then I feel bad for feeling that way and so the cycle repeats. I know I can be short tempered and snappy and inside I’m screaming. Our relationship has changed and I’m now the one who sorts everything and makes all the decisions. It’s exhausting and sometimes I just want someone to look after me or take the lead with something or even just cook a meal for me. I know I’m moaning a bit but I just wanted to say to everyone else I understand!
I think cancer changes people beyond recognition sometimes. The man I now care for is a different person from the man I married. I feel that I give and give and get so little back, because he has nothing left to give. I too would love someone to look after me, just for a couple of hours. I imagine myself with no chores, no demands, no responsibilities, just having time to do whatever I want. Then I think about how all of this is likely to end, how much time I'll have then, and I know I have to do whatever it takes while he's here with me.
Don't beat yourselves up ladies, we're all doing our best in awful circumstances. If today is a bad day, maybe tomorrow will be better. We can only hope so.
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