My husband was diagnosed with prostate cancer which had spread to his bones over 3 years ago. Hormone treatment kept in check and he was fine until recently when the pain in his hip, pelvis returned. He had radiotherapy for this which he finished over 2 weeks ago. He is now in awful pain and can hardly walk. He has spoken to the hospital they say to keep taking the painkillers and paracetamol. But I don't know how long we can go on he is in such pain and very depressed. Is this normal after palliative radiotherapy and does it get better? We need some hope that there will be an improvement
Hi Lottie M, I'm so sorry you and your husband are in this situation. Please give the CNS team another call and stress that you are really worried about your husband, he cannot cope with the pain level. They should be able to help.
Make sure you're looking after yourself too and having some 'me' time. Caring is exhausting, mentally and physically. Sending love, strength and very best wishes. xxx
Hi Lottie M, and welcome to the forum though sorry you have to be here, I also have advanced prostate cancer, diagnosed 3 years ago, which has spread to the bones, can I suggest you join the prostate cancer forum where many guys and partners share our diagnosis, you will find a wonderful group of people happy to share their knowledge and offer support, who understand what it's like living with our prognosis.
Having been a carer myself, I know how tough it is and what it takes out of you and wouldn't be able to say which is harder being the carer, or the cared for, Lottie can I suggest you contact your GP and ask about a referral to your hospice and their palliative care team and the district nurses. Please don't think the palliative team are for end of life only, they are NOT, I've had access to my hospice and team for 18 months, and the district nurses, and they've been so important to keeping me as independent as possible, comfortable and in a good place emotionally, and they support my partner too.
Eddie xx
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