It was a really tough job as in the last few days we were both sleep deprived. He kept calling for me. I admit that at times I shouted at him, at others I burst into tears. At times I was so exhausted I couldn't move.
But we had also many loving times and it was a journey we made together. He died knowing how much I loved him and he told me how much he loved me.
I could not have done this without the help of our wonderful carer whom we employed privately nor our family who sometimes came to stay with him at night just so I could get some sleep. Lastly the local Hospice who were a great support in helping us negotiate with the GP and District Nurses.
To those of you going through this journey, please do reach out for support. Also make time for yourselves during the day. It isn't selfish. You need to go out and see friends and family to keep yourselves strong and to maintain your sanity.
My husband has left me, but he is in my head and my heart after 26 years of a wonderful marriage. He was also my life-partner and best friend. I feel at peace because I did everything I could.
Thank you for this forum and sending my heartfelt wishes to all of you still on this journey.
