My hubby has recently been diagnosed with incurable lung cancer (he's never smoked) and we had our first meeting today to discuss the chemo that he will be starting soon. They also sent us home with a bag full of meds - four different lots - and I had a major wobble about them. For some reason I felt that it had been left to me to know which was which and the responsibility just hit home. I think that I've recovered a bit now, but I just wondered has anyone else had the same kind of experience? For a moment there I felt like I had fallen at the first hurdle, but it's an emotionally heightened time for all. Thanks for listening.
Yes I have had that with my husband. Read all the leaflets. If you don't understand ask. Get a notebook and write down what you give him or tick it off on the sheet. It is overwhelming at first but workout a system so you don't get confused with the medication. Good luck to your husband with his treatment and try to spend time for yourself and together with family and friends.
Hi Mia, I know that feeling too! I find keeping my own notes helps, not just medication taken but side-effects & anything else that might be relevant. I check the entries before we see the oncologist & make a list of things I want to discuss / clarify. My husband has had chemotherapy & has just started immunotherapy, and has several other health issues which complicate life further. I also feel the weight of responsibility & it can be tough!
Hi, I have had a similar experience!
My mum got diagnosed with lymphoma a few months back and the first month was very rough, lots of wobbles. The responsibility feels huge. However, over time we have got into a rhythm, I think all the unknowns are the worse, once you start going week on week you will understand the process, the reactions, side effects, what medication to take etc (I feel like i've almost memorised her meds now and when she needs to take them..) It will get easier if only just because you will know whats coming.
I agree with others in to read all the leaflets and information, macmillan is amazing for keeping you informed so get as informed as makes you comfortable as there is a lot of support around.
Emotionally it is a lot to take on also so remember to also look after yourself! Best of luck with treatment hope all goes well!
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