Urgent physical support

Hi Rosesandthornes 

Sorry to hear about your issues. Rather than me guessing I think it might be easiest if you rang the helpline  0808 808 00 00 and speak to one of our professionals who will be able to advise.

Hope you get an answer soon

<<hugs>>

Steve

Oh dear   , I'm sorry you're having such a hard time. My hubby is terminal and at home . I had this worry before Xmas as the  CNS  had not done the promised referral 2 weeks after diagnosis and I didn't know what I should do when he had a bleed .

We seemed to fall into a black hole once the "nothing can be done " meeting . The hospital is good at treatment,  but at a loss if there's not going to be any remedy .

But .... there is a lot of excellent , expert care out there and now we have palliative care team help,and district nurses , but first place goes to the GP, who arranged all the other services . Advice was when you ring GP , always state it's a palliative situation to get past reception, or the out of hours docs.services .  Or 111 and they can advise . 

I really feel for you  , such a horrible, undignified disease to deal with for both of you. I hope help is with you soon .

Zillah 

I’m in a similar situation with my husband and I found your reply to Roseandthornes very helpful , so i would like to say a huge thankyou . 

Hello Gena   , nice to meet you ,despite the circumstances. I'm pleased the response was helpful to you . ....and thanks for the lovely flowers  

Sorry to hear of your struggles. I am now in the same situation with my Dad. Just this evening I’ve had to go round to help him back into bed and carry out a ‘clear up’. We are only 2 months post diagnosis but already in the last week I can see a decline in him. they won’t provide treatment and won’t give us a timeline and I feel we’ve been left to deal with it all now. Such a struggle. I’m trying to stay wrong as he is the one that is going through this but it’s so hard. 

Hello there   ,

I'm so very sorry to hear of your struggles.  You're doing a wonderful job in looking after your Dad  , but let's face it... it's probably not a job you've trained for or expected to deal with  . It's hard .Very hard.  Especially if you feel abandoned by the services you have a right to expect to help from . I urge you to ask for help again .

I hope you can connect with your Dad's GP to ask for help . The community nurse team is very good where we live, and palliative care is very good too . It seems you need a care package to be put in place..and quickly .

If your Dad falls again I would advise calling 999....they come in pairs which means they're not so likely to hurt themselves if lifting is needed. You can’t afford to hurt yourself.... and if they feel it's appropriate they can suggest to your Dad that a trip to the hospital would be a good idea. 

I find it useful to write down my concerns and then list them in priority order .           I then use my list to get the point over to whoever I speak to about our needs , and I've been pleasantly surprised at how helpful the NHS has been . 

I hope this situation will be resolved peacefully for both of you soon ...... 

Zillah