Hello
I wanted to say hello, my husband has a provisional diagnosis of lymphoma, waiting for biopsy results to define treatment pathway after a positive PET-CT showing high activity in a mediastinal mass, most lymph nodes and bone marrow (including the spine).
Not sure what the future holds, have an appointment this week to finalise the diagnosis and discuss the treatment plan. We assume chemo as a starting point.
Managing the waiting process has been hard! Husband has insisted he wants to wait to tell family, and seems to think he can avoid telling them at all. I completely understand and support his decisions, but it has put huge pressure on me, particularly as we have a teenage daughter who knows everything (ish) and talks to her friends. He also likes to be in control, so is struggling mentally.
I really appreciate this space to discuss things with others in the same position, especially those ahead of us in the treatment pathway who can share their experience
Welcome to our community, I hope you find it helpful and supportive.
Hopefully you have seen on the main site out pages on lymphoma. There are a couple of forums on here for hodkins and non-hodgkins lymphoma.
My wife has always been very open about her cancer diagnosis so I never had the issue with not being able to tell others but on the downside they might often ask questions to which we did not (yet) have the answers.
Many on here can end up struggling to, I find the page in your feelings when someone has cancer quite helpful in being able to recognize the emotions and accept them as normal and valid can help to make them less overwhelming.
<<hugs>>
Steve
