Hello. I am in my 40s and my husband has been diagnosed with terminal cancer. He appeared perfectly well two months ago but now we know that he has two primary cancers that have spread, he has had to have complicated emergency surgery, and anything further that can be done for him will only be palliative.
I cannot describe the living hell we are now in. I don’t even know how I can write rationally and factually when both of our lives are essentially over and every day there is yet more bad news from the doctors who keep turning up like the grim reaper and a rollercoaster of occasional good days with mostly bad ones.
There is a possibility that he could come home but he is nowhere near well enough as he keeps having post-operative and cancer-related setbacks. I long to have him here with me but I am also terrified of the responsibility and the disruption, which I hate myself for.
I am exhausted, lonely, frightened, angry and so many other emotions. Despite an army of supportive friends, I feel so alone and isolated in that I don’t know anyone my age who truly understands what I am going through. In the space of a month I have become his carer even though he is still an in-patient (the ward he is on are not particularly proactive and his surgery has left him with some complex physical needs) and his wife (we married in intensive care) while also having to face becoming his widow. I feel so guilty and selfish for thinking about myself. I genuinely feel that I want to die with him - I cannot and do not want to live without him.
I feel your pain so bad. My partner was diagnosed August had no real symptoms then got told 3 places so treatable not curable. He was coping with chemo and tumours were shrinking he then had a partial blockage in bowel. 3 weeks in hospital to come home and week later passed away Christmas Day. You honestly feel like you are detached from the real world..nobody else is relevant and other conversations you are oblivious to. You are in a bubble of hell. We were told different things in hospital then kept having rug pulled from us so was an emotional rollercoaster. I feel robbed for the amount of time we had. I was so scared waiting and I'm now waiting for my time to be with him again cos I'm broken. Spend every second with him, touch him kiss him , talk to him constantly. Big hugs to you x
Thanks for replying and I am so sorry to hear your story. It has been a total emotional rollercoaster for us as well with rugs being pulled every day. Sending big hugs back x
I found out my husband had advanced cancer 7 years ago and it was exhausting I was 43. I also have 4 boys all young then and it was hard. It’s scary and lonely but it’s early days for you and you are only just adjusting to this situation. Allow yourself some rest and try not to think about the future too much (hard I know)
Thank you so much, good advice. I hope you and your boys are ok x
Hi LDJ16,
I know pretty much how you feel. My late wife was a young 49 years old when she was first diagnosed and, while she fought bravely for 7 1/2 years, the cancer proved too much for her.
The years when I was her full time carer were not easy - far from it. Every full time carer knows the pain, the constant pressure, the moments when it all feels too much. But every day is an opportunity to amaze yourself, You'll get up and face whatever cancer chooses to throw at you - and it will throw it.
It feels like a mountain, with a never ending range of mountains behind it. Try not to lose yourself in the enormity of it (and it is all too easy to do so). Take a deep breath and look at it like trying to eat an elephant sandwich - just take it one bite at a time. You can't tackle everything at once and you'll only burn yourself out if you try.
Above all else, remember to look after yourself. You will do your husband no good if you're in no state to look after yourself. Try and give yourself 10 minutes a day to yourself. It doesn't matter if you just zone out, go out into the garden, go for a walk - it really doesn't matter.
I used to take 10 minutes to look back on the day - what I got right, what and how I could improve. I didn't focus on what went wrong, or worried about the days ahead. Just on what I got right and how I can do better. I look back with a great deal of pride in how I cared for my darling Marg.
You said, "I cannot and do not want to live without him."
Rather than wondering how you will live without him, learn how to live with the love he left behind in you.
I hope you and your husband find peace.
Peace,
Ewen :-)
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