Partner with a long term terminal diagnosis

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My wife was diagnosed with terminal mesothelioma in 2016 when we were both 42 and since then has had various types of treatment. She is still fighting though has less and less strength. I care for her and our children.

Our relationship has changed over the last years, and we have grown apart as a couple. I now find that at times I am overwhelmed with despair for the life we have lost, and in particular that relationship. I long for the closeness and physical intimacy of a loving relationship, but it is physically impossible for us to have that. I then feel selfish for despairing over this when my wife has lost much more. 

It drives me mad to know that the only way for our nightmare to end is for us to lose my wife. At times all I want is our old life back. I don’t know how to stop these thoughts, and it takes a long time for them to subside. 

  • I feel what you are saying.  When my partner was first diagnosed in August we felt detached from the real world..like living in an episode of Stranger Things. I still yearned for physical intermicy etc but he had switched off. I wanted him to know I still wanted him, that it wasn't going to beat us down. He must of been in such a bad place mentally. He said his life was flashing before his eyes. I felt selfish at times thinking of my needs. Unfortunately my partner passed away Christmas Day and by that time I had then already switched off as was happy to just have him with me although dark thoughts of death kept creeping in making me feel awful. You go into survival mode. Keep supporting each other. Be strong for each other.