My husband of just 60yrs old, has spinalncord compression and an up to 12m prognosis.
I feel like I/we are living with a time bomb.
We are just existing. He gets up and sits in the living room day after day. He's bored. He's stuck in his own head. He's in pain and discomfort all the time.
I'm watching him get thinner, suffer, talk about not wanting to be here.
We have a young family, 2 girls of 14 and 2.5yrs.
I'm grieving him already and I'm scared and sick of what's to come and my life without him.
But for now how do I make his life more than just an existence?
So sorry to read your story, I cannot really say what might work for your husband though the doctors hopefully might be able to help with his pain. Sometimes of course people get concerned over some of the side effects of the pain killers and finding a balance that works can take a bit of time.
You mention grieving him already, that is really very common and it might help to look at the blog here on coping with anticipatory grief.
You might also like to look at talking to children and teenagers, our son's school was so helpful and it really helped that he got a consistent story whichever trusted adult he talked to.
Many carers end up pushing their needs right to the back of the queue but as time goes by we often find that we need to find a way of recharging ourselves if we are to be ready to be the best when we are really needed.
<<hugs>>
Steve
