Long journey to treatment plan

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I'm posting because it has taken months to get to this point. He's had bad back pain for over 7 months since finishing treatment for prostate cancer and was prescribed physio as they thought it was muscular.

Then in November he developed a bad cough and was breathless. We went to A&E and he had a CT scan which flagged up possible cancer ( given his past history with recent prostate cancer and before that, throat cancer 10 years ago) or a chest infection. He was prescribed anti biotics and told to come back in 6 weeks for another CT scan. During those 6 weeks he was prescribed more anti biotics, had an echocardiogram and angiogram but his heart looked fine. When he finally went for his CT scan at 6 weeks there were still unexplained shadows and nodules on both lungs. He had another scan a few days later, this time of his pelvis/abdomen and this showed Kidney cancer.

On Friday just gone, he had a CT needle biopsy of his lungs and now has to wait another week for results.

He has a worrying, worsening cough and is now saying there's not enough air flow in the house and wants me to open windows. I'm so worried about the treatment plan taking so incredibly long. His cough now has a wheeze sound. Has anyone else experienced this incredibly long wait and does anyone have any advice on what to do re speeding things up especially now he's saying there's not enough air, I'm so worried. Would appreciate any advice. 

  • Hi  

    Having experienced a number of bouts of breathing difficulties myself I can relate to how worrying it can be however in my case I never had the complication of having had cancer too. I have been admitted to hospital 3 or 4 times and put on Oxygen and generally that seemed to cause whatever it may have been to reset.

    It sounds like the doctors seem to be finding one thing after another - certainly had that with Janice and then the question can be which needs treated first, I guess there will be lots of people at the multi disciplinary team meeting trying to work our what is best.

    We do have some advice on Cancer tests and waiting for results that might be helpful.

    <<hugs>>

    Steve

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