One year on from hubby's prostatectamy

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One year since the op, PSA levels slowly rising again, recent PET scan inconclusive, so back to 3-monthly blood tests. My husband is a relatively young man.  So is this life from now on for the foreseeable? Just living from blood test to blood test, waiting for the PSA to reach the level where there's definitely something going on? I've felt a lot of support form this forum, and for the moment don't feel as bleak as 6-12 months ago.  But how do I support husband if we are facing months/years of dodgy blood tests?  We're sure this is what loads of people live with every day - but we are new to it. Thanks for any tips.

  • Hi GCGloria welcome to the forum. It sounds like you have been supporting hubby already so continue as you have been. It's difficult to move forward with any certainty without waiting for further check scans and blood tests. However, putting your lives on hold might seem an option, but it means that disease wins and that's not good, because you have a whole life to live. I'm sure one of my colleagues will be along soon with further information for you and to offer more support. Best wishes for now. X

    gail

     
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  • Hi GC Gloria, and a warm welcome from me, I too have prostate cancer with a rising PSA, and know it' a difficult place to be at times, and have been having 3-monthly blood tests for 30 months, my advice for you would be for you to join the prostate cancer forum, you will find many wonderful ladies and guys, happy to offer support, advice or somewhere to just offload or have a rant or even a laugh. they are all either going through, or been through what you and your husband are starting on and understand all the emotions a cancer diagnosis comes with and how to move on and get on with living, your situation is familiar to many on the prostate forum, who will happily share their experiences with you.

    my best wishes to you both.

    Eddie 

  • Thank you Gail, it's up again now so he is just digesting that while being told they're not going to do anything yet, just wait until next 3 month test.

  • Thank you Eddie.  Three months on and it's up again but they're saying just to watch and wait till the next 3 month test. When you say you've lived like this for 30 months it helps put our experience into perspective. I will go onto the prostate cancer forum and continue keeping up to date there.

    Thank you again, wishing you well.

    GC Gloria

  • Hi Gloria, it's good to hear from you again, though I wish it was under better circumstances, I am sorry to hear your husband's PSA  has risen again, but it's good to hear your joining the prostate cancer forum, their a wonderful group of people both guys with prostate cancer or their wives/partners, and will be able to offer you support and advice to help you through this difficult time you are experiencing.  Gloria that your team is happy to wait another 3 months, is good news, as it means the cancer is still in the early stages and when treatment is needed, it will be to cure, can I ask when you post on the prostate forum you include some details, if possible, his Gleason score, TNM staging and PSA numbers for all his tests, I look forward to seeing you on the forum soon my friend, and thank you for your good wishes.

    Eddie xx