Hospice or home

Hi,   I am in a similar position to you.   My husband (aged 75)  was discharged from hospital 4 weeks ago.  He was diagnosed with a  brain tumour at the end of April.  He has had surgery but it was subsequently decided he was not well enough to have the planned radiotherapy and chemo.  Approx 5 weeks ago he was discharged from hospital and is in receipt of palliative care only.  The prognosis I have been given is months if not weeks.  On discharge from hospital we were automatically referred to the local hospice team as well as the district nurses and both have been in touch.  The specialist hospice nurse has so far visited twice and is very supportive and knowledgeable.   My husband wishes to stay at home for as long as possible although the hospice will admit him if necessary (and if there is a bed) when it is near to the end.  

Hopefully your GP will refer your mum to the local hospice.

This is an awful time for you and your family and you must reach out for as much help as is available.  

Love and Best Wishes for your and your mum.

Hi Pebo247,

So sorry to hear this.....sending love and strength to you.

My Mum cared for my Dad at home up until 4 days before he passed away. It was very hard work and not fair on either of them....

My Dad was finally admitted to our local hospice on Sunday 31st December 2023......it was a huge relief to us all. (albeit heart-breaking as we knew he'd not be coming home again). My Dad visibly relaxed when he was there and the 'angels' that looked after him (and us) were amazing. They nursed him with so much respect, care and kindness, he could have been their Dad! They looked after us too. I had a lot of tears and those nurses talked to me and cuddled me when needed. It also allowed us to be his daughters again and my Mum his wife and not his carer. Sadly, his time there was short and he passed away at 1.30am on 4th January. Me, my Mum, sister and eldest nephew were with him and a nurse. We all felt so comforted knowing we were in the safe, calm hospice and we were with him when he left us. 

I'm sure whatever decision you all make it will be the right one for your family. Our experience of the hospice was very positive and I'll always be so very grateful to them.

Thinking of you and sending love. Take care. xxx

Hi. I am so sorry to hear what you are going through,  it feels overwhelming.  My husband and I discussed hospice care. He was referred as soon as he was palliative.  We had the hospice at home team coming in three times a day and overnight if we needed them . They were marvellous.He was pain free and died at home with me by his side. I would certainly have moved him to the hospice if I felt that he needed it. 

Sulubee