Stage 4 colon rectal cancer

Hi everyone 

I just wanted to air my frustration as I just feel like I have no-one to talk to nobody really understands what someone's going through unless there going through it themselves! 

My husband was diagnosed with stage 4 colon rectal cancer 2 years ago hes had 2 courses of chemo 25 sessions of radiotherapy and 1 lung resection hes currently having a break from it all but having scans and appointments with his oncologist every 3 months. 

The problem I have is I feel like nobody understands my husband has good and bad days last night he was up all night on the loo with loose stools hes getting really bad referal pain in his testicles this has been happening since beginning of the year no-one can tell us exactly what it is he recently had a ultrasound scan and they picked up nothing but its gotta be something to be causing him suchdiscomfort. He puts on a brave face so then everyone thinks he's OK his mum even asked him to do some painting for her which he did decline but then offered to cut her hedges but I doubt he will follow through with it as he literally can't manage anything at home. I love him to bits but I do everything I've given up my job to care for him we also have 3 children my youngest has ADHD and ASD he needs to be entertained constantly. I'm the one that has to maintain our garden cook clean take care of everyone and sometimes it all gets too much. I've even had a couple of people ask when I'm going back to work they obviously don't realise what I have to do or just think I'm lazy! And because we're both off work we've even been asked to watch other people's children through the holidays! Especially my sis in law shes a nightmare she literally asks us 2 watch her 1 year old every Friday I've started saying no so now hes asking my husband but it won't be him watching him it'll be me! I just want to scream we are not ok!! But my hubby tells everyone he is! 

Is anybody else going through something similar to this? Is it a male thing his pride maybe? And why aint people more understanding? 

Sorry for the rant!