Anticipatory Grief

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Hi Everyone,

I have been on here for a few months but this is my first post.

Background - my wonderful husband was diagnosed with metastatic (presumed) bowel cancer in April. He was admitted to hospital with abdo pain and ascites in October last year but it took over 6 months to get a diagnosis. The Oncologist said he had months, rather than years left. He started palliative chemo shortly after. It has ravaged his body. He has now lost over 25 kgs and suffered almost every side effect there is. The mucositis - sore mouth - is one of the worst. He can't eat much because of it. He gets angry, tearful and sad which is so unlike him. 

We get his staging scan result on the 19th - a month after it was done. I imagine it will show things have improved as he no longer has ascites or pleural effusion and his CEA has come down. We both feel he can't continue with the chemo and immunotherapy as his quality of life is so poor. This will be a tough decision because if its helping to reduce tumours - he has 7 in total - we are basically ending his life earlier if he stops treatment. 

I feel like I'm drowning in grief. It's torture. I'm avoiding seeing people as I'm so tearful. I am having counselling at a cancer charity which is helpful to offload. I'm thinking of trying Maggies, there's one about 40 mins away. I feel I need people in my life who understand and we can help each other. I suppose that's what I'm hoping for by doing this post. 

Love to everyone going through this horrible disease, whether suffering from it or caring for someone who is.

Julie Green heart 

  • Hi, thanks for the reply. Don't get out much as my wife is afraid due to not seeing well and has difficulty moving around.Mainly getting out is to the hospital and hospice.

    My son and daughter still live with us and they help as much as possible but they have their own lives to live. My daughter has put her career on hold and has started a teddy bear making and repair business from home so she can work around the care needed (hence the screen name!).  I help with this when I can and it is a distraction but care always comes first.

    Andy

  • Hi Julie, the only people to talk to are my son and daughter and they feel the stress too.  The hospice did arrange some councelling but that ended some time ago.

    In the early days I had my mum to talk too but she died the same day my wife had her stroke!

    Andrew

  • Hi Julie

    Thank you for the hugs.

    Until very recently I’ve been able to take John for outings in the car. We live a short drive from the sea so have taken the wheelchair with us and had some strolls and even a couple of picnics. However he’s 6’4 to my 5’2 and it’s become gradually more difficult to manage. His mobility has reduced significantly these past few days and it was a real struggle to get him into the garden this morning. In his confusion he’s lost sight of how ill he is and talks about what we’ll do in the future. It’s almost beyond bearable to hear. When I see people going about their ordinary lives I feel like we’re living in some parallel universe where nothing will ever be the same again. I  read about anticipatory grieving and I think that’s where I’m at.

    Thanks again for your kindness.

    Cafft