Reaching out for support

Hi there, I am having a tough day today. My husband has started peeing blood in the last couple of days. Not all the time, but it has happened three or four times. He is exhausted with the chemo, and we are due a Cycle 2 scan next week. I am trying to prioritise my husband’s care, and support my adult children at home. Also, I feel we need to be looking at an Advanced Care Plan and Power of Attorney. I am going to contact St Barnabas tomorrow to see if I am missing something that I am meant to be doing. Change seems to be happening so fast, I have to keep grounding myself, my mantra at the moment is: “I will not lose myself”. If I go down, everyone does. 

InsanityKate — An essential mantra !! It helps a lot to know we re not going through all this alone. Unless you’ve ‘been there’ or walked ‘in our shoes’ ( don’t mean to use cliches!) advice from friends is well meaning but not ‘real’ ! Keep on keeping on ! You have to stay ‘yourself’

Thank you MaddieR, it is comforting to know that I am not alone. I am lucky to have good friends that are trying to support me, but here it is different. I can be myself and talk honestly. Kind regards. 

Insanity Kate wow! I really feel for you. Being a carer is one of the hardest things and you must be careful about "I am meant to be doing"... it implies that you feel you are not doing enough or missing something. There is no playbook for this, and no "secret" formula. You do what you can and that's it. I am also in the similar place of having no one else and if it all goes down for me then it does for everyone else. It's allot of pressure and please keep going. I get it. Reach out if you need to... hang in there and take one day at a time. Believe it or not there will be days easier than others (although all pretty bad I accept)... your posts touched a nerve with me and I wish you all  the best. 

Thank you.. It means a lot to have the support. Unfortunately, I have just back from A & E. Blood in urine has increased. The cancer unit said to take him in straight away. He is having blood and urine tests. No room for me to stay. We shall see. 

You have our support on here and I send massive hugs

 Some people have to walk in your shoes to feel how you feel.

It is very scarey to have loved one with Cancer.

You never think it can happen to loved one or  to you,

When you hear about someone you know or member of her/his family you send all best and hope that who got cancer gets well

We are back from A & E. Probable chest infection. We have antibiotics. Blood could be from cancer meds. He is shattered, but happy to be home. Thank you for your support today, it really helped to keep me calm. 

I’m glad you’re home and you can hopefully get a bit of rest after all that’s happened. Not easy I know when you’re spinning so many plates and keeping it all together. Sending another hug.