Clinical trials

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Sorry, first time using this yesterday. My husband has had surgery in 2000 - neck dissection. Followed by radiotherapy- all through lock down. He came out of that but last August was diagnosed with cancer the opposite side of his neck. He had chemo followed by sepsis and lots of other problems. He has come back from that so received immunotherapy- which wiped him out and no positive results. He has now been offered a clinical trial but I’m not sure what to expect. New drug etc and sounds very full on with appointments and check ups. The family have been through lots of emergency trips to A and E in the past. Just wondered if trials are going to be any better to deal with? He’s very strong at the moment as no treatment for about 10 weeks but symptoms are progressing. I’m living day to day as I’m sure you all are. 

thanks. 

  • Hi  

    Sorry to read about your husband, if he decides to go with the clinical trial he is likely to be monitored very carefully because the doctors need to know if the treatment is working but also if there are any side effects that might cause concerns. Some people on here have said before they decided to do a clinical trial not so much for them but to help others who might come afterwards and that can be a positive way of considering things.

    If you want to discuss this with one of the Macmillan staff I am sure they would be willing to try to help, just ring 0808 808 0000 

    <<hugs>>

    Steve

    Community Champion Badge

  • Thank you. Difficult for all of us but I’ll see what comes from the trial. It’s the not knowing. They’ve just told him he can start next week but they also want to take a biopsy of his current tumour which I believe will be a painful procedure. More pain for him. He’s been through so much. Very tough.