Hello,
I have just joined this forum today. Just felt like I needed to be able to discuss how tough I am finding it caring for my mum who lives with us. She finished two week radiotherapy course last Wednesday for cancer of the osophagus. Prior to this she had a stent put in as she could swallow only liquids and was really struggling with reflux. Since finishing the radiotherapy it just feels like different symptoms every day. I try to support/deal with one thing and then something else needs addressing. She is also struggling with the pain following the radiotherapy. I just don’t feel like anything I can say or do is making any difference to how she feels. Perhaps she has given up hope of ever feeling better. It also feels like we have just been left to get on with things and manage everything. She is also diabetic and has problems with her kidneys so lots going on. I am not a great carer, I don’t find it easy and get irritated easily which I feel awful about. Do the side effects of radiotherapy improve over the first couple of weeks? I sincerely hope so as this just seems so hard for her to cope with physically and mentally and I cyst don’t know what else to say or do to encourage her. Bit of a ramble but any positivity would be welcome. Feeling a bit lost. Thank you.
Hi, Thanks for being brave enough to share this. I imagine it is only natural to not want to be a carer. None of us are born to it. Even as a professional, folk need to switch it off and be themselves. I hope you find your answers. I am at the start of caring for a deteriorating loved one and the emotions and experiences you describe mirror ours. Your poor mum sounds like she is struggling too and how can we expect our loved ones to cheer us up or support us when they are being assailed by these horrible treatments? I hope you can find support somewhere. I phoned the Macmillan nurses and had a very helpful conversation. We all need our feelings validated and I certainly have a tendency to put mine aside which makes it harder to manage them. Talking to someone helps me to be more patient at least, less irritated. My experience of side effects is from chemo and there are bad days and better days, but no good days. .I hope you and your mum get some better days soon. Sending hugs.
Thank you so much for taking the time to reply. It is genuinely appreciated. I think I will ring the nurses to discuss. We have a MacMillan nurse team allocated that we can ring but I have left two messages and not had any return call. Feels frustrating. Will try to contact via the website. I have used the chat function previously which was helpful. Thank you.
The phone number on the website put me through to a counsellor then she patched me through to a nurse and they were both completely lovely and it was just nice to be talk and be heard. We all need that. We all deserve that.
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