My mum is 92. She has been diagnosed with primary hepatic flexure tumour with disseminated liver metastatses and nodal disease.
She chose not to have treatment. This was back in October
I feel because she decided (understandably) not to have treatment she has fallen off a cliff.
We still don't have any sense of what to expect, or even understand her cancer (we understand it is colorectal cancer that has spread to her liver - no one has ever explained what is meant by nodal disease). Macmillan came to her care home and gave her a book on end of life. And that is pretty much it.
At 92 she has other health issues (heart failure, hearing, poor mobility) but we do not know what symptoms we maybe should be increasingly look out for or anticipate.
I am planning for her to move to a care home to be closer to me (i live 200 miles away), initially we did not plan this as we feared not having treatment would mean only a few months, but who knows, pretty much operating in the dark anyway.
What is the experience of others who choose, especially at an old age, not to pursue treatment. There seems to be no support or even people to speak to just to understand specific diagnosis of cancer.
Hi JKelly, I really can understand your frustration, your mums situation sounds very similar to my mum, she is 88 about to turn 89, she had Bowel cancer in 2005, with surgery to remove part of her bowel, fast forward to August last year when a CT scan picked up a large Liver Tumour 8.5cm with 3 smaller tumours surrounding it. Also picked up Mets to her lungs, she wasn’t given the option to have any treatment just care from the MacMillan nurses and her local hospice when the time comes. She also has heart problems, arterial fibrillation also Macular disease which means she is partially blind we have asked what to expect from this cancer diagnosis, just basically being told we will know when things start to change! She has had quite a few chest infections which were treated with antibiotics. My sister and I are her main carers as dad passed away January 2023 and as much as we love mum it’s exhausting, she has awful leg ulcers that are infected, her Doctors surgery nurse only dresses once a week and my sister and I are expected them to do daily. These need specialist care but nobody seems interested in getting her referred. It’s as though at 88 these things are expected! Mum is at the point now when she says she hopes not to wake up in the morning, which is very upsetting. The only suggestion I have for you is to contact MacMillan and see if they can fill in some of the blanks in your mums diagnosis, I wish your mum and yourself well on this journey.
Blimey you must be going through it. I hope you do get support. My mum is in a nursing home and trying to get her moved to a home near me. She also does not want to go on which is distressing. And yes will get back in contact with the local Macmillan. Really hope you get the support you need, i would be very worried having to change dressings.
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