Having offered support to others over the past few months I now find myself wobbling. My husband has undergone chemotherapy over the summer and continues hormone treatment for advanced prostate cancer. We took advantage of short breaks and did as much as we could including foreign travel. After both of us getting covid, one after the other we awaited scan results. A couple of weeks ago all was looking good at oncology consultation and we were told to enjoy Christmas and relax a bit. Then bang a letter to say return to oncology after Christmas. We have a supportive family who are helping us. Confusion reigned and it appears the psa levels are up and a blood result from August was why we were given hope. I am in a complete emotional mess. Still functioning and doing what I can but sinking into an emotional void.
The administrative procedures are complicated, ie who does what. We are waiting for a phone call from nursing practioners who are amazing. I am trying to carry on and be positive but can see mental determination and physical decline in my husband.
I totally understand how pushed the hospital services are but having been given some relief then changed is exhausting. Maybe acceptance is missing from me, I don't really know. The future is looking difficult and my inability to keep strong is waning.
There - early morning thoughts and no doubt I will recoup and get on. I feel naive and childish as we are not young. I feel selfish as it's not me with cancer. I have had anxiety and depression since adolescence and am.working on dealing with this with good gp support plus meditation and relaxation. Panic and crying alone is draining. Maybe gratitude for having had such a busy charmed life is in order. Accept what is happening and hope the next stage is as easy as possible for him.
When I read how young people are having to deal with this I feel very guilty and wish I could do more to support. Hey hoh. Onwards.
Neochorio
i am so so sad to read your post, I feel for you and your husband.
I know the feeling of being in a fog and not finding your way out and no one really having answers for you.
I was told last week my treatment will stop as I have fluid on my heart, none will give me answers (although I know them) what will happen to my breast and liver cancer and her 2. My husband was so strong for me, but I knew it broke him.
NHS are fab but so understaffed .All I can suggest to you is take control read about what you can do, I watch my husband go though the same emotions as me and he doesn’t have the cancer but when you love someone they feel your pain. Don’t dismiss yourself or your feeling they are valid too.
Give yourself time, do lots of things together,
sending love xxx
Thanks so much. Have rallied and made phone calls and left messages. Early hours after an early night. The sun is out so feeling a bit more positive. Really appreciate your thoughts.
Totally understand where you are coming from and how you are feeling. My husband also has stage 4 prostate, now in his bones. It's so difficult even to write this. Emotional turmoil and feeling drained are the new norm. I am off work on sick leave at the moment so not sure when my emotional state will settle. It's like that train coming down the track. For a while it's in the distance and then you see it's closer. You are not selfish at all and shouldn't feel guilty either. I don't know what to suggest. I am waiting for counselling and just rely on friends and family for support. It's a cruel disease and affects everyone so badly. I don't think there is enough spoken about it in the media. What is discussed is all surface level. The nuts and bolts of living with the disease is so hard. Bless you. You are not alone that's for sure. Sending you hugs. X
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