My partner has Autism and has been diagnosed with prostate cancer in the last two months. He has been advised to do certain things before he begins Chemotherapy mid September. For instance to have flu and covid boosters. But refuses to do so. He is also refusing to listen to any advice concerning his condition. The cancer has spread to the lymph nodes in his stumach too. I too am disabled and also have cataracts and am waiting for them to be done. He will not complete any official forms or documents and us relying on me to do it all. Ordinarily this would be fine but using a magnifying glass and other things is incredibly difficult at present. His family live in another country and I feel very isolated at the moment. Does anyone here have a similar problem. He also will not communicate with his GP surgery. And I just don't know what I can do. Thank uou
So sorry to read about what you are going through, for us it is our son with the autism and my wife with the cancer so not really that similar. I might hope someone in his care has registered the issue with forms since they are really important from a healthcare point of view. I wonder if you asked on our helpline if they might have some suggestions that might help you both.
With many of the issues you raise there is an issue that as an adult your partner has a right to make the decisions about his healthcare - even without autism it can be very difficult if the patient does not behave as we might like. We recently had a lot of problems with our son since he decided he did not want to have blood tests - until he finally got sick enough that he lost the ability to resist! Still he is an expert on these now - and getting better all the time.
Always fun too when medics ring up and want to speak to him on the phone - generally we can make them happy that he is there and can hear while mostly my wife answers the questions.
<<hugs>>
Steve
