Yesterday was such an emotional day, its hard seeing my mum getting weaker, I think she's been masking the pain but finally last night asked if I can call the doctors tomorrow (today) for anything stronger. She isn't sleeping well at night either.
I feel so stuck in ways to turn, I just feel since she got poorly in May that she's just been left to deal with things and even now week 4 of being diagnosed she's left again (well bar from me and her sister) there have been things mentioned in hospital like oh we can help with the smell from her cervical cancer or another in hospital is you're quite anemic and of course tonight I've not slept well so I've been thinking of everything snd why hasn't she been given medication if these things can help
She was sent out of hospital with a nephrostomy bag and nothing more like advice, I had to ask the nurse at the gp when she had a dressing check on how to sort the bags, I've never done anything like this, so where are the district nurses?
Since being poorly and floored since May the inly way my mum gets comfy is laying down, what quality of life is this and now I'm worried even more as that surely isn't good, her organs will be getting weaker and weaker, I and her sister are doing everything we can with the housework/her meals etc but I want her to enjoy life, its the summer holidays and we usually do so much together with my two girls and we aren't doing anything..I want to make memories but she said she's too tierd and weak but then I see others who are terminal and they are out making memories.
I'm stuck in I don't even know where to turn or what to do, my mum has always been independent and loves making memories with her grandchildren so it's just so so so hard in seeing her this way.
I'm worried she will end up being too weak when her treatment plan is out in place whenever that will be.
A few people say ring her macmillan nurse, but what do I say and what does her macmillan nurse do? I feel stuck
(Just needed to get that off my chest) x
