My husband was diagnosed with throat caner 7 years ago, and after vigorous treatment he went into remission and was only signed off last year due to the pandemic.
Last year my husband started to feel unwell, and we thought it was long covid. Following three different doctors and numerous failings, he was finally diagnosed with secondary liver and bone metastasis and given 6 - 12 months.
We have two grown up children and grandchildren but we had kids young and we're only in our early 50s. He's too young.
I've just stepped back from work having asked for time off whilst I take care of my husband. We've been told short weeks are left.
I feel like I'm tied to train tracks watching the freight train coming.
My husband has and is incredibly brave, he's battled so hard, he's lead by example and never moaned or complained. We live in thw day, lots of visitors and family over, but I feel disconnected, like it's about someone else. I'm terrified of what's coming. I'm completely caring for my husband, we do have contact with the local hospice and hospital.
I feel sad, emotional, scared, I can't change anything. We're all strong together with the kids, we've been frank and transparent.
I'm just reaching out, our story is all to common, and I know lots of people are in our shoes.
My husband is disappearing before our eyes. I'm hanging on as hard as I can and he is with me. He said I'm sighting to stay alive. Its heartbreaking
Oh Marco20, I hear you. Too many of us are in the same position. It's cruel.
My husband was diagnosed with a stage 4 brain tumour in Sept 2020. He was 50 at the time and the diagnosis came out of the blue. Initially we were told 12-15 months....and they passed. In Feb this year we were told "a few weeks, 2-3 months at most"...and they passed and we're still going. We're now in the care of our GP, the local community nurses and the local hospice nurse. He's still physically fit. Mentally/cognitively is a whole different matter. He's more like someone with dementia than someone with cancer.
All we can do is our best. Live each day as it comes and keep going. Yes, the future's unknown and a bit scary (ok- a big bit scary some days) but we're stronger than we think. We've made it so far and we will get through this but for now let's just try to enjoy today.
sending you a huge virtual hug and lots of positive energy. Stay strong.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
