Hi,
This is my first post. My mum has had multiple myeloma for at least six years. She had chemo which put her into remission but left her with peripheral neuropathy and, strangely, a foot that moves on its own. The toes contort in ways they just wouldnt if she moved them voluntarily. I've watched her deteriorate over the years, more so now and its getting so difficult for me to watch..im getting really irritated with her and its not her fault, she cant help it. Things are worsening, she has pain in her ribs and stomach, has chronic kidney disease stage 3 and feels dizzy when she stans up. She keeps being put on a 'maintenance' dose of chemo only to be taken off because she ended up in hospital once..same reaction when put back on but she didnt let on because she knew she'd end up back in hospital. She's been off it since Easter but has an appointment with her consultant May the 4th so im taking it he'll discuss her options then.The latest trip to hospital has been for a bone scan because of the rib pain, hoping to get results soon.
She lives on her own, i visit often but can see there might be a day i need to move back in to care for her but im not sure i can cope with that. Feeling stressed and irritable, tearful and angry all at once.
I do have a brother and sister. My brother visits once a week and my sister...well...once in a blue moon. It's a hard journey for all involved..not sure what i expect from writing this but thanks for listening
