Hi all, this has been a long a hard getting harder road. My husband was diagnosed in June 2020 with kidney cancer that was removed. Then come the October symptoms after his operation continued & scans in the December showed it had gone much further lung, liver & lining of brain.
with immunotherapy then having to change to targeted therapy working to keep the cancer stable until the last scans. Which showed over the last 6 months there had been progression, meaning it was time to finally change to the one drug left to him. Knowing how sensitive he has been it hasn’t been a surprise within a week he had to hold taking them, now back on them again I can only hope that it helps keep him symptoms free with the quality of life I know he craves.
we have managed to pack so much in over the last two years & I have found it so hard watching him on his more difficult days when he’s not even had the strength to get out of bed.
I feel for our children who look up to him so much & are also finding it hard as they want to spend so much time with us but know they have to work which also is a way of distraction.
we have been very lucky to have so much love in our family
I know others here will have gone or are experiencing similar situations. I just wondered how everyone managed to get through when you’re informed it’s the last type of medication available?
Hi Sigrid
Sorry to hear about your husband and the worry of being on what is the last line of treatment. My wife is not there yet but years back she had an issue of sepsis and that was especially difficult.
I can really relate to the idea of working being a helpful distraction, it can feel like the world is more "normal" when we have things we feel we can control.
I did a living with less stress course that really helped me. Often we here people talking of living day to day or even hour to hour and a key element is noticing things around us - even bad things we can focus on and accept they are bad and then put them back in the box - it can be a helpful tool.
<<hugs>>
Steve
