It has been a real roller coaster of a month . My husband was chosen for the new cryotherapy treatment and operation to cure his extensive peritoneal cancer. The operation was 14 hours long with the team literally looking and feeling every organ and then filling the peritoneal cavity with this cryotherapy treatment. The next day I was able to see him in intensive care where he stayed for three days. Then they closed the hospital down due to a Covid peak. They wanted to send him home after 10 days but he produced pus on his lower lung and diaphragm. Apparently, this is normal with this kind of operation. Finally he spent a month in hospital. Now we are home and the battle about eating begins. I have spoken to the oncology nurse who is looking for a psychologist, in August a rare thing. The nutritionist has visited and has told me to take care of me too. He has a temporary stoma but right now is his own worst enemy. We have been told they got all the cancer out, but on 8 August we will be given the results of the biopsy. Fingers crossed!! However, I am drained, exhausted and although I do yoga and singing and today went to get my hair done, as a carer I never see the end of the hard work for me. Am I being selfish?
Hi Toyo
no you're not being selfish! You say yourself its been a real rollercoaster of a month and that takes it toll.
The nutritionist is right- you need to take care of you too. Taking "me time" isn't selfish its essential here to give you the chance to recharge your batteries so that you can support your husband.
I've been supporting my husband in his stage 4 brain tumour journey since Sept 2020 and I'm not too proud to admit I'm exhausted - emotionally and physically but a little "me time" each day keeps me going.
This group is a safe supportive space so reach out anytime. There's always someone around to listen who gets it. We're all doing the best we can here and I've drawn a lot of support from this group over the months.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
Right now I'm sending you a hug virtual hug. Please keep practicing your yoga and keep singing. it's all good for your soul.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
