Feel like Mum has been abandoned

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First of all apologies if this is not in the right forum. 

My mum was diagnosed with stage 4 incurable/inoperable duodenum cancer in March this year and quite honestly the journey since then has been like pushing water up hill. The waiting time between appointments has been terrible however after 66 days since diagnosis she was given a plan of chemo; once in hospital every 3 weeks then carrying around a pack for the rest of the time. About 10 days after starting this she became so poorly she could barely walk and was admitted to hospital for a number of blood transfusions. She was told to come off the chemo for a week and an appointment with the specialist was booked for Tuesday just gone. At this appointment he was going to discuss with her whether to lower the chemo to just the 3 weekly blast or move onto radiotherapy instead. She turned up for the appointment (bear in mind she isn't leaving the house at the moment due to being weak and tbh I think she's battling with very low mood), waited for an hour only to be told that the doctor had left the country due to family illness. She was told to come back on Friday for chemo, although she didn't really trust what she was being told. After a lot of digging by me we found out that actually he'd gone away a week ago and she should have been told then. Also no one else will be seeing her whilst he is away as they don't feel confident deciding whether to continue with her treatment. So for now no clinic, no chemo and no help. She feels utterly abandoned, like she has been left to die and I don't blame her for feeling this way. Since her diagnosis she has been pushed from pillar to post and has received no real support apart from the couple of time she's been in hospital for blood transfusions.

Given that the GP initially dismissed her concerns and it took her collapsing and being rushed to hospital for any of this to be found I'm not surprised that she and the rest of my family are struggling. I have a family of my own (husband, two young children), a job, house to run which is currently being renovated and my brother and dad are doing a fabulous job of looking after her day to day but I've always been the strong and practical one so I am taking on everyone's worries and organising the financials etc. My husband is a fantastic support but all of this and the worry about what is to come is starting to affect me; I'm bursting into tears at random times, snapping at the kids, eating terribly, and just feel tired all the time. I know this is nothing in comparison to mum.

I don't really know why I'm writing, I guess its good to get it off my chest.

  • Hello

    youre perfectly fine to use any forum, but this seems the right one. Sorry you’ve had so many difficulties, the health service isn’t what it was, not enough staff or resources, to give the care that’s needed. The delays between appointments are awful, and I understand your feelings of abandonment.it’s so good you’re not alone, this is a time when you really need support.

    sending you love and strength 

    Sweat Linda You are my best memory, You are all of my best memories

  • Hi there 

    Your in the right place and I can totally relate to how your feeling. My dad was diagnosed with stomach cancer in March this year and for us its been a battle all the way - from getting a GP appointment to cancelled procedures and missing Nurse Specialists who've provided little support.  

    Its an already stressful time without feeling like you are being abandoned so i do feel for your mum and your family. I hope you find time to take care of yourself - I am finding it tricky myself but have booked simple things like a massage etc to keep me sane. 

    Take care x