Neuroendocrine cancer

Hi @toto and welcome to our community.

Sorry things are so rough at the moment, we often hear about issues with chemotherapy but you are right that steroids can be a big issue too. Fingers crossed that they do the job though so that this pain is worthwhile. 

My wife has had cancer for a similar amount of time, most days are good but then something else does have a nice habit of coming along and getting at us.

<<hugs>>

Steve

Thankyou. I have the local hospice coming out tomorrow so hoping for some support. Tough times. 

Toto,

I hope things go as well as possible. I know what you are going through as my wife's cancer was neuroendocrine too. It's a complexed thing. She battled it to the end but sadly it took over. All throughout she experienced every side effect possible; it seemed that she was the whatever % who suffered  every side effect if there was one. It was difficult to watch but we tried throughout.

Stay as strong as you can.

WDJ

My husband had Neuroendocrine carcinoma high grade 

everything you read is so negative 

our oncologist is so negative too

just feeling so sad and helpless 

Things taken a rapid turn for the worst. Rapid decline and now palliative care. Utterly devastated. 
My son is travelling back fronOz I pray he makes it on time

This disease is just horrid and unpredictable.

Carolynron,

My heart goes out to you. We had at least an oncologist who was positive. Even at very end, I asked for opinion from the lead who assured nothing could be done.

It's a devastating cancer which does not get the same, I cannot think of the word, 'publicity' as many others. The problem also is that it is not diagnosed until the latter stages. So, why the f@ck do we never hear about it? My apologies.

Try to stay strong. That said, I write this as I experience both a significant date since date since of death and a looming anniversary.

It's far from easy but try to keep going.

WDJ

Toto,

We went through the same. Hospital the Monday, told the Tuesday, hospice the Thursday, three weeks later the end. It was devastating.

I can only say the hospice care was beyond what I could have asked for.

My thoughts are with you and your family.

Take care,

WDJ