Hi new here

Hi Gregorysgirl

a warm welcome to the online community. So sorry to hear about what's been going on. 

I was flung into your situation in Sept 2020 when my husband was given a terminal diagnosis (glioblastoma). Nothing prepares you for that and if you're anything like me, you'll go through every emotion in the book and then some. But, you know what, that's ok. It's a natural response to the situation. The most resilient people are the ones who show their emotions.

As for advice, well you've done the hard bit. You've reached out to this community and there's always someone around here to offer their support, to listen, to offer that virtual hug when its needed. I've drawn a lot of support from this group. 

It’s always good to talk so please remember you can call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

My husband isn't someone who ever opened up to talk about anything so we've had very few frank discussions about his situation. I find all I can do is be there to listen when he wants to talk. I'm led by what he wants/needs and find I'm watching him like a hawk. We had an awkward conversation with his oncologist last October and that was when it hit me that he's not so much in denial as that he has his head in the sand. He kept saying "But I'm fine" over and over again. His perception of how he is on a day to day basis differs from what the kids and I see and observe but as long as he's content, we're happy to let him live in his wee comfortable bubble.

Please make sure you take care of yourself. This is a tough roller coaster ride so please take time for "me time". It's not being selfish, its essential in helping you cope. Take time to meet friends for a coffee or go to the gym or go for a walk. You need time to get your head round things and to recharge your batteries. Even 10/15 mins with a coffee and a music can be enough. I've also found journaling helps me to get my head round things. Once I see the words written on the page, they don't seem as powerful or as scary. Might be worth a try.

Take each day as it comes and on the rough days, take each hour as it comes.

For now, I'm sending you a huge virtual hug. Stay strong. You're coping so much better than you give yourself credit for,

love n hugs

Wee Me xx

HI there- we are here, and listening. And many of us know exactly what you're going through. 

This has been a good support for me. I didn't reach out until my husband had been diagnosed for 10 months, not knowing what I could get from seemingly rehashing it all over and over. On Christmas day at 3 o'clock when I was sitting downstairs alone and really feeling it- I did. I found this group and it's been really great. People are kind and non judgemental, open and so willing to listen. 

Make sure to find some simple moments and time for yourself- even just a little. A bath, walk, netflix and sour candy- who cares?

Take care, T.