Husband has terminal lung cancer

My partner had the same diagnosis five years ago.  It is a hard journey, but he has had two different chemo’s and immunotherapy which have all helped to keep him reasonably well.  He has just finished his last chemo, the last scan was positive lets hope the next is.  This forum is great, we are all in the same boat, so understand the rollercoaster ride of emotions - just reading and sometimes venting on here has been a great support.

Hi Janzy 

Thanks for replying it's true emotions up and down just trying to take one day at time my husbands chemo is every 3 weeks and then he get a scan week 9 .

Hello there-

Yeah it looks like we're all in the same boat. My husband was diagnosed with inoperable lung cancer that had metastasized to his adrenal glands and bones, in March. He has had chemo with immuno- and now just immuno. He has had worse scans and better scans. Not to mention a plethora of side effects and other things. I am also super up and down and wish I could be better some days- but others know that it's not possible. Some days I find myself thinking I can't do this forever. And some days I know that I won't have too. Then when he gets some good news, I find myself pleasantly surprised at how relieved and light I feel. I think this group is great. I didn't come on here until Christmas Day when I sat downstairs alone and was just lonely and sad. People say, "I know how you feel, my Grandmother had cancer".....it's different when it's your love. 

Make sure you find small moments for yourself and some nice things!

We are here.

T.

Thk u mamaT yes its hard some days then as u say a little bit of good news is nice even if it only lasts a while .I'm at work part time it's good to get out then somedays I just can't b bothered do anything x take care 

Hey Doodles- how are you today? 

Tomorrow is our 24th wedding anniversary. I have told him that him having immunotherapy tomorrow will be his gift to me. Ugh and yeah it's kinda lame but also profoundly meaningful in a way. 

I feel confused this weekend as he is now deemed "stable" yet this morning when I asked him how he was today he replied "I wish I was dead". Great okay....and this weekend has been so hard with pain. He is exhausted and worn out and I get it! Poor baby. 

Also poor US!!!

Take care, T.

Hi Mama T know the feeling my husband not doing good this week after 1st dose of new chemo it's hard somedays I'm up he's down he's up I'm down one hour at a time for us x 

Hi there. Just want to say Hello and let you know I am here and In the same boat.  Husband was diagnosed with Stage 3 locally advanced lung cancer in July. 8 weeks of intensive chemo & radio later, we hoped we were on the road to recovery but unfortunately in November we got the news it had spread to the other lung and his adrenal gland. He is only 44 and due to the speed of the spread he was given 8 months prognosis without treatment and only a few more months with chemo/immunotherapy and some radiation to control pain. He tried a round of chemo on New Year’s Eve but unfortunately he was just so poorly with it, not eating, sleeping 23 hours a day, we all agreed to choose quality over quantity. So we are now in a world of limbo, just waiting! Fortunately he’s had a really great few weeks and is keeping reasonably well but this is with the aid of steroids so I’m not sure how much is real and how much is chemical.  I’m finding the constant battle with this so very hard. Trying to stay strong and positive. I want to try to get the most out of the life we have left together but unfortunately he just wants to sit at home and see no one and do nothing. I find myself so very grumpy most of the time, at him and at the world in general. 

Hi Mrs 

Thk u for replying my husband got his 1st new chemo last Thurs he is not eating much and just sitting about its so sad  I don't know what to do . This week I can c him failing so much with no eating plus chemo.  

It's very  hard to stay strong I am the same as u I'm trying to take 1 day at a time and it isn't easy.  Its nice to come on here to read and write about our feelings ,take care xx 

Hey Mrs D,

Sounds very similar to what my husband has. Lung plus now adrenal and now bones. After chemo and immuno and some radiotherapy he is deemed stable. However the pain is the main issue- along with being a zombie  with no energy at all. I think his abdo pain is from all the hardcore drugs he's been on now for almost a year. He is only 9 stone 4 now and at 5'11 not ideal. I feel bored and burnt and just.....well trapped in a way. Great that immuno works so well- and it keeps people alive, but for what if you are in bed all the time? 

I get the feeling grumpy part to. And it's even worse if they notice it cause then that makes it even harder. 

It sometimes feels I wake up and think- "Another day in paradise". HOWEVER the sun is shining and.....well the sun's out. (lol) 

Hang in there- we're all doing the same.

T. 

Hi Mama T 

How are u doing this week x How's u hubby doing x 

My hubby isn't eating great trying to get him to ring nurse he was on sickness tablets for 5 days no good   not vomiting just feeling nauseous  he just won't listen to me I wish he would phone and get something for nausea I'm sure there is something his second chemo is 23rd Feb .

Hope your are OK