Hi everyone.
My husband has incurable urothelial cancer. He has been on treatment for 10 months now. It is a brand new treatment and the doctors said it should halt the tumours. We have come across someone who was on the trial for this treatment and 4 years later has had much better results than the doctors predicted.
Most of the time we trundle along well enough & try to stay positive. But my husband is struggling with side effects at the moment & feels dreadful most of the time. He broke down this morning & said he can’t do it any more.
He is due a break from treatment, so I tried to reassure him that he has time to recover now.
But my emotional well seems to be run dry at the moment. I feel like I have given everything I’ve got to him and our daughters who are both going through various issues at the moment and hate the fact that I almost feel emotionless now.
I feel like he needs support from the right places to get through these difficult patches.
Where is the best place to find that support for him?
Thank you
Hi DamnC
I found our local Maggies really helpful for face-to-face stuff, they take a line of being more homely and less like a hospital type setting while my wife has engaged less there.
Would he find a Macmillan buddy helpful?
There is a tool where in your area that can help find support near you given a postcode, sometimes it can be worth trying the hospital postcode too.
Something that I came to realise if I was to be the best help to my wife was that I had to look after myself too, my GP was really helpful and I did a living with less stress course that really helped me. I was doing the what if's and the rest and it stopped my appreciating what we have, then the breathing exercises were great in helping me relax but also when life decides it is time to throw another curveball.
<<hugs>>
Steve
