Hospice?

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We have just been told that there are no more treatment options and are now trying to decide if using a hospice in the final weeks is a good option or not. My husband doesn't want to be alone and would prefer to be at home until the end but I am scared that he will be in pain and I won't be able to help him and I don't want the kids to see him like that. Also finding him dead or dealing with him dying is not something I feel at all prepared for.

  • Hi

    Sorry to read this message too - I do not think anyone is ever really prepared for a loved one to die and on the other hand it is really difficult to know when the end might be.  Hospices are great at what they do and of course pain relief is something they specialise in. With staff on duty 24/7 patients are very well looked after.

    <<hugs>>

    Steve

    Community Champion Badge

  • I don't think any of us are ever going to be prepared to deal with the situation you may find yourself in YT3.  Could you talk to your husband's medical team or GP about the different options.  Maybe you could talk to someone at your local hospice about how all this works.  I am sure you won't be left totally on your own to care for him.  Macmillan could even be involved.  I am sure they would be able to help you if you give them a call 

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  • Hello I’m in exactly the same position… so scared of finding my ex dead or worse him being in pain suddenly or trying to get out of bed…. He’s in hospice at the moment he’s been given 2 weeks to maybe a month by hospice doctor… I’m so torn as I know he wants to come out if there… back to my spare bedroom Where I’ve been caring for him…

    I’m so upset

  • I sadly lost my husband in April and the choice of where he was to spend his final few weeks turned out to be easier than I expected.  I came downstairs one morning to find him bleeding out, he was rushed into resuss and he was alert. We were told he would die in hospital but when I asked for a transfer to the hospice it was quickly arranged. My darling husband was looked after there with dignity and compassion.  He got to say goodbye to our babies and I held his hand until the last moment.  What I learned from this is that the hospice was the most amazing place for his final hours and the support they offered was incredible.  Whilst he did initially want to be at home, he got to be pain free and comfortable in a way he wouldn't have been at home. Whilst I can't tell you what to do, my advice is to have a conversation whilst you still can. They are experts in pain management and can offer a greater amount of dignity and support than elsewhere. I'm assuming he wants to be at your house so that he's not alone. During the final stages the hospice we used allowed 24 hour visiting and perhaps if he knew this it would make a decision easier.  My heart goes out to you, when it happens you will not be prepared even though you know it will happen. The hospice helped me and even if you make a decision to continue to care at home they will still support you after he has passed. xxx