Dear All,
I am kinda flabergasted at my husband's living in total cloud coo coo land about his cancer. Maybe this is a good thing. And perhaps the only way his brain or psyche can cope. But for me- I research and ask questions and think. He has always said he didn't want to know about what was going on REALLY. Kind of a Peter Pan/Ozzy Osbourne thing he's had going on throughout. I've allowed it. I work full time on a local stroke rehab unit and have been off work now for 2 months due to his ill health. I worked for 8 months after his diagnosis however. He has lung cancer which is inoperable and had spread to his bones in 3 places and his adrenal glands. He had chemo and is now having Immunotherapy regularly. However with all the side effects and fatigue and meds he needs 4x a day. And I am pretty sure he has the wasting disease (cachexia) so I am desperate to keep or put weight on him. I manage everything including doctors, nurses, when he gets sick and it needs escalating, blah blah I'm sure if you're reading this- you know what I mean! But the other day I was saying that as his latest scan deems him "Stable" meaning no progression, I will need to get back to work and my "sick note" finishes on March 4th. I am so worried. I don't want to lose my job. I will need it!
So the other day I was trying to explain this to my dear man who is on Zomorph, Ora morph, Diazapam etc.....and I said something like "I can work until the time that it comes back and I need to stay home again"/ He looked at me with these puppy dog eyes saying, "Do you mean I'm not going to get better? I am waiting for the time when it's like the advert and they say YOU KNOW LONGER NEED ANY TREATMENT. " I was floored by this. I can't believe that he actually thinks he will be cured. I said that his oncologist would not try the treatments on him if he didn't have a chance and that they ARE in fact, working. But I said, It's not like a broken arm. This morning he woke up saying he was dying and if it weren't for our daughter and if it were allowed he'd go to Dignitas.
I feel so confused.
He is a smart man. He must have some inkling about how ill he is...? surely.
Denial is a wonderful thing.
Anyone have any similar experiences?
Thanks for listening,
T.
Hi there,
I can imagine how confusing this must be for you. It's a very difficult situation to be in for sure. I think you were probably right when you spoke about "denial" in your message. The psyche is a wonderful protector; and when something is too painful for us to face, when it makes us too afraid or too upset, we can deny the truth and no-one and nothing can make us face the facts until, one day, it hits us - like it was this morning when he suddenly said that he felt he was dying. I would imagine that your husband is actually very honest with you and that it really feels like this to him: most of the time he is sure that he'll be okay and, at other times like this morning, he is aware of the fact that he is dying but then, very quickly, goes back into denial again because this is a safer place to be - or at least it feels like that to him.
When my husband was terminal with prostate cancer that had spread to the liver, he went between saying that he knew the end was near and saying that of course he was not going to die and that he would be "right as rain again soon" for weeks. It was very confusing.
Lots of love and strength to you, Mel.
I don't like the term "moving on" because it sounds to me like we are leaving our loved ones and the life we had with them behind. I like the term "moving forward" as it implies that, while life goes on, our loved ones are still with us in our hearts and minds.
Hi both,
I remember a time on here where a carer was totally upset when a doctor came to their house and told their loved one they were dying. Sometimes of course it might be worth reflecting on that old point that we are all sure about is death and taxes.
When I did a living with less stress course one of the key messages I got was to try to keep focus on the here and now rather than what ifs and all the rest.
<<hugs>>
Steve
Dear Both,
I agree with it all I spose.
Not sure what's going on really. One step forward I spose. Here and now can also feel pretty darn bleak. This morning we had a massive fight- but it's okay now. His brain is mashed up with the meds. The fight did lead to a necessary heart to heart- but still he said that until I had said that they had caught it pretty late- he had thought he had a chance. Ugh. It's on me. I can't imagine feeling more upset and anxious and uncomfortable and just generally miserable really. And that's just ME- nothing to do with him and all that he must be experiencing. This morning he said he knows he is dying.
I am so sad and burnt out really.
Thanks so much for listening- and sharing.
T.
Hi Mama T, I hear you!
My husband isn't so much in denial but he has his head in the sand all the time. He was given a terminal diagnosis on Sept 2020 ( Brain tumour). We were told at the time he had 12-15 months.( they ran out in Nov 2021) We then got letters that were needed for his employer that said he wasn't expected to live for 12 months from that point (March 2021) He's still physically very fit. Mentally he's slipping and is now like someone with early stage dementia.
However his perception of how he is and our perception of the reality of how he is no longer match. He keeps saying he's fine. While I have to admire his positive attitude it's now bordering on a tad dangerous. He's booked a skiing holiday to France for the middle of March with our daughter. There is no talking sense into him about it. I've had some harsh words with her about the risks and how will she cope it heaven forbid something happens while they are aware.
He's entered the Manchester marathon in April and swears he has a personal best time in him still.
Over dinner this evening he said he had put an entry in for a half marathon in London. When I asked what date the race was he said October. ... I just bit my tongue.
He's content in his wee fantasy bubble. Who am I to burst it?
It is so incredibly hard though so I really feel for you. Hang in there, You're doing great here.
love n hugs
Wee me xx
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