My sister just recently diagnosed with lung cancer, we do not know what stage. Awaiting PETscan results, but mobility has severely decreased, energy levels are so low and practically no appetite. Also diabetic so proving to be a challenge. Cannot even come down the stairs anymore, needs help getting in bed, really proving a struggle. I would like professional support and care for her. GP has been beyond useless sadly.
Hi hun, I'm so sorry to hear about your sister and that you're going though this with little support.
Whilst you're waiting for more tests etc, I think the first port of call for this should be your gp, who sounds like they need a shoe to the bum tbh. They can refer to local seevices/hospices/social care to muster the support you need.
Once the cancer specialists have a management and treatment plan in place for your sister, they will be able to help you in accessing the support you need and may fill in some paperwork on your sisters behalf. They did for my hubby when he received his diagnosis and we went from zero to a flood of nurses and Hospice staff in a few days. The Gp should also be able to refer to the occupational therapy team too who can visit the home and do a needs assessment for equipment your sister may need.
I also found a call to macmillan helped enormously, it's hard to know where to begin when you're in shock with a new diagnosis.
Much love. bb x
Depending on where you live, you need to find your local charities for support but for a care package you could talk to the Social Worker at the hospital your sister is under. MacMillan centres can also be great help for you. On the not eating, diabetes side of things ask her Doctor or consultant for a dietician referral. They will assess your sisters needs and help her. You could also try your local carers centre who might be able to signpost you for help for your sister but would also be able yo offer you support because you need to have an outlet too. Caring for someone is often a thankless task, is extremely tiring and can put you in the firing line for the anger and frustration of the person you are caring for.
You need to ask for help because unfortunately in many cases the information is sparse.
We are here to support you too because we are either going through caring for someone or have been caring for someone so we all understand how you are feeling. In the small hours of the night when you need to talk, come on here, don't sit there feeling you are all alone...... many feel that too x x
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