I'm not really after advice as I dont think it's something that can be fixed right now but I just need to let it out,
Since my husbands diagnosis I have just been constantly on high alert incase something happens to him.
Hes been having a type of seizure and the last time it happened he was upstairs, I was downstairs without my hearing aids in and I didn't hear him for a while. I could hear a distant banging but thought it was the dog. I felt awful when I suddenly realised and found him on the bedroom floor. It was already hard but since then I find myself looking at the clock everytime he leaves the room and if he's been too long I have to go check, I think I'm getting on his nerves!
He's been on anti seizure meds for the last couple of days and he's been fine but I just can't shake this Co stant feeling of anxiety. I can't even eat properly because it feels like there's a constant knot in my stomach.
I just don't want to leave him alone but I think we both need a break from each other, but if I go out he's in my mind even more than when I'm with him!
I just don't know what to do. Its just so hard in ways I didn't imagine!
Hi LoobyLou
I'm in the exact same situation and utterly terrified of not having eyes on my husband at all times. Its a constant worry for me. He's been on keppra since last June and SRS has helped a little, the Hospice consultant has just introduced some further meds to try and stabilise them.
Ive had great support from the hospice community team who have provided some respite so I can leave the house without being in a constant panic about how long I am away.
I hope you can get the same in place for you.
Much love
bb
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