Hi, I'm really struggling.
Since my husbands diagnosis I just cannot sleep. It's like I'm on constant high alert, waking at every noise incase he's not OK.
I cant eat properly, food just goes round and round in my mouth and I struggle to swallow it.
I want to go to the doctors but I'm worried if they give me sleeping tablets and something happens I won't hear and wake up! (I wear hearing aids but don't wear them in bed)
I just don't know what to do
Hello LoobyLou41
Welcome to the forum, I am glad that you have taken the time to consider how this terrible news is affecting you. It is (in my opinion) a difficult place to be, as the partner of the person of the diagnosis, sometimes the experience the partners are going through are overlooked or pushed to the side because of the understandable concern for the person with the diagnosis..
Fear has a way of keeping us awake, of playing on our minds and of creeping in to almost every thought that we have, this will be the case for a while. I have briefly read some of the other posts you have responded to, and although your husband may have previously experienced something similar in the past, it does not negate how scary this new diagnosis is.
In the early days of my husbands diagnosis, I was awake most of the time, and if I did drift off, I would jolt myself awake again and listen out for him breathing. As time goes on, I sleep longer, but I still wake and I still listen... I am not sure that will change.. I am just fully aware now that whatever will be will be.. I am more useful to him after a nights sleep than after none.
Take some time for you.. acknowledge your own fears, but remember you are one person, you have to sleep, you have to keep your strength up and you have to face your fears, and remain as positive as possible.... writing these words are simple, but believe me, I truly know that doing these things is more difficult. Acknowledge these are early days into this new diagnosis, you are strong, capable and caring and you will find a pattern that suits you, even if that mean afternoon naps.
Wishing your husband all the very best and to you, I hope you can acknowledge how much you are doing already, X
Lowe'
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