Neutropenic Sepsis

Hi @caliban,

Fingers crossed that they get on top of this before too long. I must admit I had to look up Neutropenic Sepsis to work out what it meant though with Janice we did experience sepsis even before we had a cancer diagnosis and it is truly dreadful how quickly someone becomes very sick.

I know how hard it can be to think back to why did we make a decision in the past but perhaps it is worth reflecting you with the oncologist made what seemed like the best decision in the circumstances - it is so easy to look back and think "what if".

<<hugs>>

Steve

My husband had this after a course of a different chemo. He was in hospital for about 6 weeks with it, many complications, 3 lots of iv antibiotics at a time, oedema,(had to buy him t shirts 3 sizes larger than normal), skin problems, any complication you can think of, he had. Now on azacitadine as there is less risk with it than the original chemo, and so far he's been ok. On his third cycle at the moment. I suppose different people react to different things in different ways. My husbands sepsis was eventually found to have been caused by an abscess. The chemo didn't cause it, but didn't help either as it affects immunity. We were told about the risk of this, along with all the other potential side effects, at the beginning, and told to check his temperature twice a day throughout the treatment, so it could be spotted as soon as possible. Hope your husband feels better soon. 

Very many thanks and loads of love

Many thanks, Steve. I just wish all the risks had been made plain. With terminal diagnoses, there are only downsides. I should have realised. Good luck and I hope all is well there tonight. 

How is he doing now? 

Hello- thank you for being there,

He is in a rubbish situation. Hospitalised now for well over 2 months. White count in his boots and endless infections. Oedema. Transfusions all the time. No idea about discharge date. I wish we had never started the azacitidine- it has done so much harm. 

Sorry to hear that. My husband has has around 38 transfusions since it started in April. When he was at his worse, with sepsis, heart failure and everything else, we probable wished he hadnt had the chemo, but we also know that without it he probably wouldn't be here now. Keep in touch with the hospital staff so they can keep you updated. I found it better to ask for a dr to phone me now and again, as he had different nurses looking after him every day, so although they knew what was happening on the day they were there, and most were really good, it sometimes felt like they knew nothing else about him, what had happened the day before or week before, not even sure they were talking about the right person sometimes! All the best, stay strong, and look after yourself.

Very many thanks- I really appreciate your message and support. He has been so ill for such a long time now, it is difficult to believe that things will get better.  Thank you again for being there. You and others in the forum are very kind and encouraging. 

Hi How are things now?

He may have secondaries in the lung. He is losing weight. The hospital people are worried. I am