Hello,

FormerMember
FormerMember
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Hello, I am new to the online community, and I just wanted to share my story as I have come to know talking is so important, specially to help others.

My nan got diagnosed with advanced metastatic breast cancer last July, she has been taking Letrozole tablets ever since. And between me and my mum we have looked after her over the past year.

Unfortunately in late June she stopped going out and this is when we started to care for her a lot more. Then over the past few weeks my nan has started slowing down, this week she has been referred to the local Macmillan team who we should be hearing from anytime soon. She is such a strong and independent lady and has tried for so long to hide her pain and keep going. So to see her slowly slow down and accept more help from me and my mum has been really sad to see, but we are so thankful that she is accepting help. One main thing my nan is suffering with is confusion and hallucinations, these are always of a mouse in her livingroom.

I also just wanted to ask a bit of advice, my nan is refusing to go into bed on a night and is sleeping in her chair, the doctors has talked to her and we are hoping the Macmillan team may be able to help her at least get into bed on a night. We have got her a comfy stool for her feet to go onto as her feet started to swell. But she says shes comfier in her chair as now the doctors believe the cancer has spread to her bones (my nan did not go for an MRI as she did not want to hear anymore bad news at the time as the consultant knew it had spread). We just think been in bed will help with her back a little more. 

Just wondering if anyone else here is caring for anyone with breast cancer and having anything similar?

Sending love to you all xxx

  • Hi 

    Sorry to hear about your Nan. I can’t help in the breast cancer part but my hubby has prostate cancer that has spread to his bones. He often says that he can get comfier sat up and will often fall asleep. I think it’s probably best to just let them get sleep wherever they can.
    One thing to consider is the special cushions (repose) that they can sit on - they reduce the risk of getting pressure sores from not moving about so much (our district nurse arranged it for us ) It’s look like a tiny lilo. We also have the same sort of thing for the bed but haven’t inflated that yet as it’s more for when he gets more confined to being in bed.
    Hopefully the Macmillan team will be able to give you some guidance but if not do you have a local hospice - ours have been amazing and even though my husband wants to stay at home until the end they are still helping us so much. They have given us an emergency number that we can call 24/7 even  if we just need some advice.