Hi I am new to this forum, I am a carer for my husband who has recently been given a diagnosis of Mylofibrosis he also was diagnosed with Vascular dementia which isn't too bad, mainly memory and mood changes. He does have a few other problems but those are the things we are struggling with, well I am. Sorry sounds so selfish but I have had a few bad days lately.
What with blood tests, hospital appointments and tablets being changed, just this week he had blood tests Monday which I was met with what tests is he suppose to have from the treatment room they had not received instructions from Consultant, funny that because when I spoke to MacMillan nurse she found them on the system and received them. Then Wednesday was the Ultra Sound the person doing it said to him all looks clear. Now today we have to see Consultant so he can sign for having the other Chemo tablets, then Saturday yet another hospital appointment for his skin.
I really feel like swearing!! I have 3 kids Girl 51, Son 50 and Son 48. Both our sons have fell out with their Sister, which makes everything that much harder, Individually they are great but, we cant have any more family days this has gone on for over a year, I have tried everthing to change it but none of them will do anything to change the situation. I feel I am on the edge every day I can just cry at the drop of a hat. Sorry folks for depressing you with my flaming story.
Flavour
Hi flavour
Sorry you have so many things going on together so your message does not sound selfish at all - just well done for reaching out here, funny how somehow touching someone here can help.
If we look at Your feelings when someone has cancer we can see how common many of your feelings are, even without the added adventures of dementia and the issues with your children. Emotional programmes on the TV, particularly really good news stories bring my emotions to the surface.
One thing I had to learn was to take some time to look after myself, it took some time, lots of help and a course of living with less stress that taught me to ensure I am at by best to deal with all the other stuff going on in our life.
Do post whenever, someone is always listening.
<<hugs>>
Steve
