My husband was diagnosed with cancer of Unknown primary November 2020, had radiotherapy which made him loose over 2 stone then chemotherapy which hospitalised him twice and gave him medically indused diabetes.. chemo not worked andcancer spreading rapidly ,he is going down hill fast. I am doing everything for him now and with working and house and elderly mother I am really struggling,i cry all the time feel like if it wasn't for my 2 older children i would Just give up and go wth him (neither of which are at home 1 at uni and other working but lives miles away) i do not want them to kmow how down i am so just say i will cope when asked as I know they are struggling to cope with there das illness aswell. When does it get any better because life can't get any worse. Sorry for ranting but i feel like I am going mad nobody understands how hard this is as nonody in the family has been through this.
i know how hard it is and im only at the beginning of it.so sorry your feeling so down but with a damm good reason to be. it gets really annoying to me personally when you see on tv these celebs doing the woe is me bit and not having to deal with anything apart from there dying careers half the time. the whole cancer thing is f..ing vile ive only just had to deal with this since literally new years eve with the diagnosis and not sure if we all think alike but never thought it would happen to this family. is he taken the drink suppliments as they do help slightly with the weight issue and i think add some vitamins to them. my mum has to have two a day as she went down to 5 stone but within months and still even though shes had radiotherapy and its reduced the tumour the weight is still hard to maintain. although its a nightmare making her drink her drinks. quite a nice medicine to have in my eyes a couple of shakes. the name of them is fortisip and chocolate flavour although they do vanilla strawberry to mention a few. these are much more like a milky drink where as she was sampledsome other brand before which was like condensed milk yuk. i can imagine how your husband feels too with the entire body weight loss thing. its shocking and scary how someone can alter so quickly. im new on here so to be honest a bit clueless of forums but hoping to clue up on responses etc. incase i cant find this post again may i sincerly hope you keep your chin up in this bloody awful time and i truly hope that perhaps some new treatment or a treatment youve not heard of yet falls on your lap and turns things around for you all. by the way i dont think its a rant its a cry for help or just a good old scream incase its bottled up inside. may be one step though with the drinks as i know just putting on i think it was half a stone for my mum when she first went on them put her in a much better frame of mind. only thing was sometimes constipation so was also on dulcoease i believe. wish you all the best again
Thankyou for your kind word's. My husband had cancer before 30 years ago just after we got married but beat it that time,never thought we would have to go back through it again. Life is just not fair.
He has been prescribed the shakes by the dietician so i do try and get them down him when he wont eat.
Its very hard when you feel like because they cannot find the primary cancer that they have just given up on him and only palative care offered.
I struggle to get through each day as as soon as i wake up i have the sinking feeling in my stomach and dread what each day brings,not sure how much more i can take,i will probably have to go to see mg gp as cannot feel much worse than i am at the moment.
Just writing it down and hearing from others in same position helps as i struggle to show my feelings to other people as i have always had to deal with everything myself without help from family so i am finding letting it out hard.
I wish you all the best in what you are also dealing with and hope you get a better outcome than we have.
I cry all the time too. My husband has a brain cancer and had radio therapy and oral chemo. It has made him very slow of thought and short on concentration. We are only just 6 months in and we have no children so it's us and my parents who are elderly. I have had to give up work and volunteering. It is so hard and I too wonder if it ever gets any better. I hope that you will be able to stay strong and cope.
if you ever need to let loose or feel really low you can always message me 24/7 i know im not a medic etc but i always have been caring regardless of towards who. my sleep cycle is up in the air too so perhaps if you also get sleepless nights i may be online to message. i know its wrong to say but if your like me does it sort of annoy you when they dont eat food. i know that sounds really selfish from me and i really wouldnt know how i would react to having a diagnosis of cancer whether id be a trooper or give up without a fight. my mums only picked at her last two meals that i cooked and its so worrying. she constantly has tea even though ive tried saying it fills you up prior to dinner seems like its falling on deaf ears and then she will say about loosing weight. your inbetween a rock and a hard plate half the time yet trying to maintain some calmness when inside its tearing you apart. when you mention primary cancer we have never been told any of that so i dont really understand what it means even. thats the most annoying part as ive been dr google and overdosing info that is probablyirrelevant just due to lack of direct knowledge
Thankyou, for your offer , i find it really hard to accept this is my life now, i love my husband dearly and can't bare to see him in such pain, things have got more real today, the consultant told us nothing more can do for him as he is going down hill so fast, DNR put in place today in case he ends up in hospital again that made me breakdown In the hospital can't bare the pain of loosing him. Asked whether he want to go into hospice later or stay at home , iI want him at home but guess we will have to cross that bridge when we come to it.
Had to tell my son and daughter aswell, they can see he has been going down hill but still hard to accept.
Sometimes wonder if there is a god up there .
Thankyou I am sorry you are going through this aswell, it feels like a very lonely Road we are on but it does help when we can let it out a bit on here
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007