So much has happened in such short space of time

FormerMember
FormerMember
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My husband was diagnosed with stage 3 bowel cancer just 8 weeks ago and during that 8 weeks there have been numerous appointments, five days of radiotherapy and surgery (less than 2 weeks ago). We have had no time to take all of this in and now my husband is so low, he has an ileostomy which he is finding difficult to accept. He is eating very little food and as a result is constantly feeling nauseous, which makes him want to eat even less. 
I have been holding myself steady throughout with only a couple of wobbles but now just when he really needs me to be strong I don’t feel as though I can hold myself together much longer. 
He is a shadow of himself and my heart is breaking watching him struggling so much. At the same time I feel angry with him, I feel he should be making more effort to get well, he needs to eat to help with his recovery. We need to process all that has happened so that we can face what comes next but I don’t know where to start to help him and myself do this. 
At least one family member asks every day how I am feeling so I know that I am not alone but how do I tell our daughters, brothers, sisters and friends how I really feel when I know that they are all trying to deal with it themselves, where do I begin? 

  • Hi. I got diagnosed in May and its been the same ... a flurry of hospital appointments, lots of new people who's names and roles I have to remember, facing a terminal (in my case - at 56) cancer diagnosis, telling the family and friends (some great - some not so great). I had a business before all of this employing lots of staff so I am used to a full on life ... but this is off the scale. The physical impact is difficult but the emotional one is enormous. 

    Your own journey echoes the one my husband has been on. We have no kids and are each others world - the impact on him has been enormous. Gosh we have had some real fights as he is angry when I get low (his fear of me giving up). I understand that and I did, at the stage you are both at right now, give up for a bit - it was all far to much. But you do get through it and start to think more positively as you get to understand what is happening.

    I guess the only real advice I can give you, based on my limited experience, is:

    > Ask lots and lots of questions and write the answers down

    > Give it time to be absorbed - there is no rush (though it may not feel that way)

    > Reach out to everyone who can help you... professionals (here, Pancreatic UK, other cancer supports attached to your hospitals, local GP support. Put yourselves absolutely first

    > Ask your family for help without feeling guilty - they are probably waiting to be asked to help

    I am in the carers only forum here which I don't think I am supposed to be in so will need to leave it. But I hope my comments help in some way.

    Jenny

     

     

  • Hi Caztec

    I’m in exactly the same place as you.   I don’t know where to start to help my husband either.   I feel I’m constantly nagging, but I think if I don’t he wouldn’t even try.   
    I think it’s ok to have a wobble, a good cry (usually in Sainsbury’s car park!) helps. 
    I know this isn’t much help to you, but at least you know you’re not the only one.   It actually just helps to know that as well.   So thank you for posting, stay strong and we’ll get through this.  

  • FormerMember
    FormerMember in reply to JennyO

    Hi Jenny, thank you so much for your reply and helpful advise. I guess I am trying to rush things and not allowing them to absorb naturally and we have missed so many opportunities to ask questions but there will be other chances and I have started to make a list. 
    I hope you are doing OK, have a lovely weekend and thank you again. 

    Carol 

  • FormerMember
    FormerMember in reply to Xangi

    Thank you Xangi and good luck on your journey. Yes it does help knowing that others are going through the same thing, at the same time it is also sad knowing that there are so many of us.

    Yes we will get through this, strength in numbers. 

    Have a lovely weekend. 
    Carol. 

  • Hi Caztec121, so sorry to hear about your husband. Sounds like you've all had a rough few weeks.

    It's a year since my husband was first diagnosed and we were flung onto this rollercoaster ride. One thing I've learned over the last few months is that there's no right or wrong way to feel. You're going through a journey, an emotional journey, too and its ok to have a wobble or two or three. All the emotions - tears, anger, fear- are perfectly normal. I know what you mean about not being able to say to friends and family about how you feel - that's where this community is a huge help, We get it! We're all sadly going through something not a million miles away from what you're experiencing so feel free to vent on here.  I'm lucky in that I have a few very close friends I can be 100% open and honest with but I've also learned that "I'm fine" can say so much! Please try to take time for yourself to recharge your batteries - go for a walk, exercise, read a book, have coffee with a friend, whatever it takes to make you feel like you for a wee while. It really does help you to cope.

    Hang in there. Stay strong. You're doing great!

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • FormerMember
    FormerMember in reply to Wee Me

    Hi Wee Me, thank you for your response and advice. We have had a good day today, my husband is eating and sleeping better and I am feeling much stronger. I have been for a good walk, got back into my journaling and meditation. Onwards and upwards. 

    Kind regards

    Carol xx