It's too tough

FormerMember
FormerMember
  • 18 replies
  • 42 subscribers
  • 3070 views

My husband was diagnosed with NET Cancer last year, we were stuck in lockdown throughout treatment, he was stable Dec to June but now we are active again and this time I'm struggling, last night he  lost it with me, screaming how he has cancer n how I don't know how that feels. And yes he is right but he has no idea what it's like but I have tons of experience living with cancer n him. It's taken over everything, it's all about him and his needs, his treatment and how he feels, I dont come into any of it. Dr's n nurses ask him how he is, n I sit there zoning out because its all I can do not to just get up n walk out. No one says "how are you?" I know that sounds so selfish but this is my life too and I feel like im drowning and no one has noticed. No one cares, not even him. Everything is a moan or a dig about his aches n pains n if I hear about his bowel movements one more time I'm gona cut my ears off! Is it normal to resent ur cancerous husband?  To wish for an hour off where u dont have to continually listen n to his moaning, where u can just not think about him? Is that selfish? Because I feel like im loosing myself all over again and he is just take take take from me. How do I survive this? Especially when people ask you about hospice care n want to punch them because ur no where near at that point n u can't even face thinking about it? Let alone talking about it! I just want to walk away n never come back........Sob

  • I so relate to this Minniepippa, I find when mum is miserable and crabby I can't handle it - we do so much - everything - for them to give them the best quality of life they can have, but it's not enough and speaking for myself that makes me feel like a failure.  It's not the dominant feeling, just is there sometimes.

    When mum first came home from hospital she was delirious and had no memories of her own home.  It was heart breaking and she also behaved very childishly - she was insecure and scared and inconsolable.  She gradually improved and is now almost the same person cognitively, with occasional wobbles. 

    I am sure your husband will improve after Chemo, and wishing you both all the best xx

  • FormerMember
    FormerMember in reply to EthelM

    Sue thank u! And the same for u! It really helps talking so lease feel free to reach out x that's so apicable to anyone reading this x 

  • Thank you for your post.  My husband has secondary stage 4 liver cancer and I keep myself busy with our 15 month old, 8 & 6 year old children.  I keep myself busy and sometimes forget to check in with myself about how I am feeling.  I'm grateful you've reminded me of how resentful I have been towards my husband.  He is very miserable.  I have feelings of being overwhelmed, guilty we can't provide the childhood I had expected to provide, etc.  The hardest thing for me recently has been my husband being depressed.  I am a positive person, but his negative filter, understandably so, has been affecting our 2 oldest children and I am there trying to overcompinsate for the parenting his is emotionally unable to provide.  I do meditate daily, pray, and get out of the house as often as I can, exercise when I can and that does help.  Wishing you all of the best and know that you are not alone in your struggles!

  • Hi, he really does my head in sometimes. I've been writing down how I feel in a private diary, it helps to vent. I remind myself what he and life were like before all this, why I fell for him.  Still, sometimes I just want to scream at him, thankfully I haven't yet.

    Sue
  • FormerMember
    FormerMember in reply to Coco201

    Im the same! And my husband does wollow when he is down! I got his csn to get him in with a Councillor so I'm hoping that will help plus it cuts me out of it as I'm struggling with my own stuff, could Laughingu try the same? Talk to him in offloading to someone else for the benefits of the kids n u in mind? Would he go for that? Iim so sorry ur going thro it too, think we need a what's app group to call for support! Laughing 

  • Thank you for your suggestions.  I have urged him a few times to go for counselling, but he gets angry when I suggest.  I did 10 weeks counselling earlier this year and that really helped me.  I've literally just started keeping a journal while little one is napping and I will keep that up as it is a good release!  

  • FormerMember
    FormerMember in reply to Coco201

    I think everyone should journal its so cathartic and helpful, I'd say speak to his csn but I wouldn't want him to turn on u, so u do what's best, I personally blackmailed my husband in front of his csn n Dr into getting councilling after I told him it was our last appointment I was coming too thankfully he relented but I don't want to make it worse for u, if u need a chat please message, Wink

  • FormerMember
    FormerMember in reply to EthelM

    Sue I think exactly the same! It's tough to hold it together isn't it? I hate that everything revolves around him n how his cancer is, like we had a life b4 n now there isn't room for me, or our son. It's suffocating! And dragging him thro that is exhausting, I can understand why people don't stick around, not that I would leave him but I never understood before x

1 2