My dad was given 6-12 months in feb with lung cancer and In a week, he’s gone from making his way upstairs and taking himself to bed. To now Ina hospital bed down stairs, incontinent, not eating and barley drinking.
it’s happens so fast I’m struggling with it I’ve gone from full time working to full time caring
changing his bum
changing his conveen
Washing him
trying get drink down him and his meds
dealing with all that coming in
we have district nurses daily visits and Marie curie night sits . He’s been sitting in his chair all week for parts of day as that what he loves, but today has not moved from bed.
just wondering how long I’ve got and I have to keep leaving the room as it’s so upsetting and don’t want him to se me upset.
inlook at him when his arms are flailing and think just go in your sleep and then feel guilty cause he has lucid moments and makes me laugh and I think no stay.
it’s such a cruel illness long and bowl 2 primary’s
Hi ,
so sorry to read this and wish I could answer your question though I am sure you probably realise there is no answer.
I can relate to your feelings around guilt though from the time as my dad had a very long illness though it was not cancer.
Those moments when we can laugh together are so precious and thank you for sharing those with us.
<<hugs>>
Steve
I'm the same with my mum, we were told 3 months but that was only 3 weeks ago but now we are back in hospital and she needs help to get washed, go to the toilet, can barely get out off bed. Has lost so much weight in 2 wks and if I can get her to eat its less that a bird will eat. She is so weak, I'm trying to get her home as quick as possible as they are saying if I don't her home before a certain time I could lose the chance to get her home where she wants. Im also struggling with what help I need in the house with mum. I am pregnant and I'm due in 3 weeks time. They have said I need to be in contact with a social worker before they know what I'll need for my mum. There is too many options I'm soo confused. She gets district nurses out twice a day to change her driver. I also have a hospice nurse to call to manage symptoms but that would every 2 wks and she is changing so quick it's scary so I know how you feel, it's the unknown for me.
Hi
Macmillan and the district nurses sorted all that for us with in two dads. They came in assesses dad, applied for care package so we where entitled to carers x3 visits per day and 3x night stays per week. Then district nurses went from weekly to one a day and hospice at home once a day. It’s was the district nurses that applied for all this and got his hospital bed downstairs, as he too wanted be at home and so far we have managed it.
soeak to Macmillan and district nurse and say you need all the above.
you can private message me too as hard work and taxing x
Hi Sam, thanks for replying. Things have changed overnight I didn't manage to get my mum home, I'm in the hospital staying with her, the doctors have told me she won't make it through the night.
Hi patch 1
I am so sorry to hear this, your in my thoughts x
my dad pass away yesterday 8.10am, after caring for him for weeks and even though I was here with him. I’m absolutely devastated, I really thought there would be some sort of relief, but there isn’t! I’m just empty. The impending organisation of everything and even going back to my own home today is filling me with dread. I told him on Sunday to let go as he was unconscious for 2 days, I now feel guilty as as though I’ve wished him away.
thanks to those that took the time to respond to previous threads
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