Struggling

FormerMember
FormerMember
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Caring for a close family member with lung cancer which has spread, palliative care only now. I live alone but am taking it turns with another relative to care. Also having 4x daily carers.

Struggling with witnessing such fast deterioration, relative has become so anxious and frustrated, it's so hard to be there when all I want to do is hug him and make it go away.

I'm dreading the inevitable but I hate seeing the pain & suffering and just want peace. I feel torn. 

How do others cope with these feelings?

  • So very sorry to hear of this. The burden must be tremendous. I watched my father go slowly to lung cancer. Sorry to say, I rather disengaged from him whilst my brother cared for him in his last days. Since regretting that, I've had three cancers of my own to confront. Although the spiritual practice I rely on is no longer terribly popular, it has sustained me rather fabulously through all of it. I am Catholic and my faith was building in the years which lead up to cancer - which gives me pause at times. I tell no one what to believe. Rather, I explain what I believe. We are adults and we can judge for ourselves.

    If one has a cultural practice, world view, philosophical outlook, psychological practice or religion, I advise one to delve into it; to leap into it as one would a refreshing pool on a hot summer's day. If it fails to satisfy, keep seeking and you will sooner or later find the relief you seek.

    ______________________________________________________________________
    One cancer (PTCL-NOS) 3 times. Two other cancers: Angioimmunoblastic T-Cell Lymphoma 2 times, and 20q deletion MyeloDysplastic Syndrome) were chemo refractory. All three cancers simultaneously in 2015. Stage IV twice + MDS @ 23% of marrow. 12/22 diagnosed with Squamous Cell Carcinoma. Thus far, 14+ years, 20 drugs, 4 clinical trials, Total Body Irradiation, 1,000+ years of background radiation from scans. 7th remission so far. Haploidentical stem cell transplant, acute > chronic Graft-versus-Host-disease. Currently receiving my 7th GvHD regimen.

  • Hi

    The biggest thing the helped me was doing a living with less stress course. I discovered through mindfulness practice that I was living in some future world where things were always blacker and that blocked me from enjoying the here and now. There were breathing exercises that helped me cope with the unexpected - there always seems to be things coming out of the blue. Transcendental meditation though was just not for me.

    Relate some more in what you say in relation to my dad, where it was not cancer - and while we expected the end it still hurt but it also felt good to know he was no longer suffering - a huge bag of mixed emotions.

    As for how anyone copes - we learn some way because we do really have little in the way of choice.

    <<hugs>>

    Steve

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  • FormerMember
    FormerMember

    My partner has prostate cancer which has spread to bones, liver and probably other places. He is unaware he is receiving palliative care as he has said he dosnt want to know. I'm struggling too with watching him deteriorate. I'm finding that you're not on your own feeling like this and whilst I cant offer any advice I can only offer love to you and your family member. 

  • FormerMember
    FormerMember

    Thank you all for your kind words x